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  1. TiredSam

    News from Germany

    Oh go on then, here's the middle bit: Doctors' Advice: Continue normal activities as much as possible NO increased bed rest Avoid extreme exertion, tailor your activities to your ability Learn from short-term setbacks Accept limitations temporarily So you can see this waffle can mean anything...
  2. TiredSam

    News from Germany

    It's from a rehab clinic working on behalf of the German pension authorities. Before qualifying for a sickness or disability or work incapacity pension, you have to demonstrate that you've tried rehab, so you have to go to this place to stand a chance of stopping work early. Their model is that...
  3. TiredSam

    Using PCs versus laptops when you're mostly in or on your bed

    You can move the phone to whatever position you want, it's not fixed, so you can even lie on your side or move it to whatever position you want or change positions. You still have to raise your finger to tap the screen (less so if lying on your side), but at least you don't have to hold the...
  4. TiredSam

    Using PCs versus laptops when you're mostly in or on your bed

    I've been using this in bed for my phone for a month now and it's great: Holding my phone up whilst lying in bed was a real effort. You can also use it with a tablet, but I use it just for my phone.
  5. TiredSam

    PwME and synesthesia

    It most certainly is.
  6. TiredSam

    PwME and synesthesia

    One of my favorite books (which I waited years for to come back into print before I could buy it) is The Mind of a Mnemonist by A.R.Luria. I came to it because of my interest in memory, it's about a patient of Luria who had a perfect memory because of his synesthesia. If I remember rightly (I...
  7. TiredSam

    Leg tensing up only at night

    I get restless legs at night sometimes, especially during hot weather. I've found a correlation with how much meat I eat before going to bed, so if I've just been to the Greek restaurant in my village and had a mixed grill I'll be in for a restless leg night. I've found that jam helps, just...
  8. TiredSam

    LP-fortellinger - Norwegian website sharing information and experiences about Lightning Process - now available in English

    ME is an illness which could almost have been designed for these charlatans to target. The delayed nature of payback for physical exertion gives them just the right window of time to operate their one-off 3-day course and claim success, then blame the mark for anything which happens afterwards...
  9. TiredSam

    Lightning Process - discussion thread

    I've been on a course of homeopathy for 8 years now. In Germany homeopathic remedies are delivered free to all households via the kitchen tap.
  10. TiredSam

    Lightning Process - discussion thread

    I have been lucky enough to be able to think myself a bit better over the years. One of the helpful thoughts I have had is to stay well away from the lightning process and any other such woo.
  11. TiredSam

    Children, disability, CBT and exercise.

    Once again I had to do a double take after misreading something. I read:
  12. TiredSam

    News from Germany

    For anyone who understands German, I've just been listening to this podcast: https://www.deutschlandfunkkultur.de/marina-weisband-chronic-fatigue-syndrom-100.html Only half-way through, but it seems excellent so far. A famous political person in Germany who's had ME for 2 years.
  13. TiredSam

    Well-known, famous people with Covid-19 and Long Covid

    Anyone who meets me thinks I seem in great health, including doctors. I bet he had a bit of a rest before and after that concert.
  14. TiredSam

    My opinion on the topic “angry posts by patients on social media are harmful and something should be done about it”

    I have been blessed with a temperament which has allowed me to maintain a continuous state of fucking fury for 8 years straight. I am not on any social media, it probably wouldn't be a good idea, as I'd hate to undermine the splendid efforts of those of us who use social media effectively in a...
  15. TiredSam

    A general thread on the PACE trial!

    Thanks, I needed that. I was getting a bit het up but now I'm all mellow again.
  16. TiredSam

    A general thread on the PACE trial!

    That explains why the likes of Wessely and Crawley consider themselves to be brave heroes, and have even constructed the concept of the militant activist to support their delusional narrative. This unhelpful belief system (brave champion hounded by militant activists) has a way of spreading from...
  17. TiredSam

    A general thread on the PACE trial!

    They are never going to get their heads around it. They know all about correct methodology (didn't Wessely write the exemplary "Clinical Trials in Psychiatry"?), but consider what they are doing as more advanced and appropriate in the field of psychological research. They regard us as...
  18. TiredSam

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    If CBT and GET worked we'd all be doing it. Why on earth do they think we wouldn't?
  19. TiredSam

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    I see I have ten posts on that thread, so now I can tell my mother that I have been cited in The Lancet!
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