Search results

  1. B

    Accurate and Objective Determination of ME/CFS Disease Severity with a Wearable Sensor. Palombo et al. 2020

    this gets us nowhere.
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    Drug decreases gut leakiness associated with ulcerative colitis

    do you have a link for that information? could not find anything! ty!
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    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Efficacy of Repeat Immunoadsorption. Tolle, Scheibenbogen et al. 2020

    looks placeboish
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    Low CD3+CD8+CD57+ ? Senescent T8 cells?

    @Jonathan Edwards best man to ask this
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    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    @Jonathan Edwards is this not excluded with rituximab studies?
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    Autoantibodies to Beta-Adrenergic and Muscarinic cholinergic receptor in ME patients - Bynke, Bergquist et al -2020

    b1 seems significant.
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    USA: National Institutes of Health (NIH) intramural ME/CFS study

    It is an extremely sad circumstance that this community screams for change so much and at the same time there are not enough me/cfs patients in the US to get to the NIH. What us going on there?
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    Juvenile myasthenia gravis unmasked: a case of a teenage female (with CFS diagnosis) who presented in acute respiratory failure, 2020, Leyens

    Reaction to the antibiotic?
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    Prevalence and Treatment of Chronic Fatigue Syndrome/ME and Co-morbid Severe Health Anxiety, 2019, Daniels et al

    You can have a severe nerological disorder and severe health anxiety, what would be surprising about that?
  10. B

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    What is the status here? Does anyone know?
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    Peripheral endothelial dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome, 2020, Scherbakov et al

    well they are just f**** for different reasons in different people, there is very unlikely one reason for all patients, what we need is trials with stemcells f.e.
  12. B

    Peripheral endothelial dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome, 2020, Scherbakov et al

    of course there is, I do not understand why it takes them so long, Oaklander talks for 3 years now that SF are important for blood circulation of the brain,... the question is what drives what,... also mitochondria are very important for arterioles function,... we know whats the physical...
  13. B

    Short summary of meds i tried by now

    nmda antagonists,...
  14. B

    Plasma exchange

    Personally I tend to believe that we would have found the cause of it already if it could be found with current science/knowledge/technology. I believe one day the answers will be found in the big black boxes of medical science like „mitochondria“ and „brain“. I hope sooner than later.
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    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    same here! any differences in severity?
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    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    So if a patient would have chronically low cd8 count (for years), what would you think about that?
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    Perturbation of effector and regulatory T cell subsets in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2019) Karhan, Unutmaz et al

    Is low cd8, cd8 lymphopenia a frequent finding in me/cfs?
  18. B

    Plasma exchange

    Why is it so complicated to identify this? Could you give me some kind of insight into that?
  19. B

    Plasma exchange

    So why isn‘t the whole world not looking for it? I mean there is a huge financial benefit to find this out!
  20. B

    Plasma exchange

    So it changed something for good potentially?
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