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A hot mess?

I attended a presentation last year at a university, and the researcher lamented that with 50 millions funding for dementia, they could’t do much. To me it reflects on the additional barriers we are facing in the field of ME, the paucity of researchers, the stigma, the lack of funding. Maybe...

I am not sure the word is allowed but i will try... why are these people allowed to bullshit like this? Don’t they know that a minute change in daily routine, or a change in their thoughts will not change disease status? And don’t they dare trying that on Long-Covid patients. if you don’t have...

It reminds me of this paper: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2796.2011.02405.x I am not exactly sure how the results compare, but perhaps the novelty is all about trigger PEM from arm stimulation+sensory triggers from presence of someone, and having a conversation with...

This showed up on my twitter stream: Moderator note: This has been posted and is discussed here: https://www.s4me.info/threads/forward-me-group-minutes-thread-july-2020-onwards.16000/page-2#post-298803

These treatments would be offered off-label by specific doctors, under the right circumstances. Here in Canada, there is a much tighter regulation against the use of off-label drugs, especially if the drug cost a lot of money, requires IV administration, and is riskier for the patients. Also...

Who knows whether it is available for clinical use? Would like to bring this article to the attention to @Jonathan Edwards to the new paper. I am sure he delved plenty in ANA over the years. In the past he has mentioned that ANA didn’t mean a whole lot and that positive ANA was common for the...

The antinuclear antibody dense fine speckled pattern and possible clinical associations: An indication of a proinflammatory microenvironment (2020) Lundgren et al Abstract Background: Indirect immunofluorescence (IIF) is the most prevalent screening antinuclear antibody test for systemic...

i think that amino acid utilization is interesting and may be providing clues as of what is going on in the muscle cells (albeit in vitro). But i am more interested in knowing 1) why this is happening. 2) whether the same thing happens in other diseases 3) whether the muscle cells return to a...

Nice to see that Jonathan Kerr is still in the field. I worry about the focus on psychological stress.

I agree with you @Forbin. Back in the early days, because i was believed to be lazy and faking illness for secondary gains, i went for a run as i did in the pre-illness days. I was determined to prove them i was not lazy. It was really weird because i could not run as before, i had to alternate...

Dr Hanson part 3

Part 2

Here is Dr Hansen’s slides (part 1) and to be noted, indeed dr Hanson went first, then dr Lipkin, then dr Nath

Dr Lipkin part 3

Dr Lipkin part 2

Dr Lipkin’s slides (i may have missed one) part 1

Part 2 of Dr Nath’s presentation:

I watched. Dr Lipkin shared that he still had after effects of COVID, mostly fatigue. He is rehabbing through exercise. Said he didn’t get COVID while in China, but believes he got it during a television interview. From the presentation of Dr Avi Nath, there will be a study examining the long...

No offence to you @strategist but so tired of hearing of diet remedy for our yet to be explained disease. This is not a diet deficiency problem.