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I wish the researchers could live in the bodies of the sick people before they stick a nasty label and prescribe cognitive therapy to correct behaviours. They have no understanding. I mean what if the patients were honest about what is happening in their body and it was a physical (ie...

If she can be funded for all these studies, she should be able to spend the time to submit to ethics review boards to ensure that her research is sound. Thank you for bringing it up again @dave30th. I wonder whether the people at Retraction Watch would be interested in this post?

they say that in order to recover you must participate in self-management... blah blah blah. The discharging of patients is not new- and abandoning patients is not new. I would suspect that those that recovered did not do so because of the program, they simply had enough oomph in their cells to...

I think their protocol is decreasing the chances of positive tilt table test for both POTS, because they had that 5 minutes active stand test just before hand. Moreover, just before the TTT they only rest their patients 5 minutes They said that 15% of their cohort is already on...

thanks, it was when it came out. I changed it in original post.

the question is... is it relevant?

Says everything you need to know about that presentation.

but unless your diet is not varied and sufficient (say you can only eat 2 or 3 food and nothing else, you are not bound to be deficient in anything that would jeopardize your functioning. I would hope that if you only ate bananas, pasta and peas, that you thought of taking a multi-vitamin. There...

I very much doubt that vitamins and minerals will be the cure for post-viral illnesses such as ME and LC. We pwME have been at it for decades and vitamin protocols have cycled through and through, same for diets protocols. We are still here.

It is unclear what timeframe was allocated while on these supplements- are we talking weeks? Months? When was the effect recorded? Is there a longer term measurement planned?

Abstract: Chronic COVID syndrome is characterized by chronic fatigue, myalgia, depression and sleep disturbances, similar to chronic fatigue syndrome (CFS) and fibromyalgia syndrome. Implementations of mitochondrial nutrients (MNs) with diet are important for the clinical effects antioxidant...

how can this be?

Early on in my disease, I felt absolutely shitty, and I begged my doctor to do a Cortisol test. I did the AM and not sure if I did the PM that particular time, but the AM cortisol came back flagged at a critical low number, to the point where the lab phoned my doctor instead of just faxing the...

I tend to agree, but it seems like this work, particularly the electron microscopy is detailed and labor intensive, and not something you'd do by the hundreds.

It would be worthwhile to repost in recruiting studies category so it gets seen more widely

Agreed re: N=2. We do know that we are extremely heterogenous and missed diagnosis happen. We certainly cannot draw any conclusion from this paper or generalize to our community. Further comments: The 2 subjects investigated are men and within ME women are over-representated by a 4 to one...

No abstract, behind paywall. Full title: A Zoonotic Henipavirus in Febrile Patients in China There is a news article here: https://www.the-sun.com/health/5961203/china-sounds-alarm-new-langya-virus/ Excerpt:

thank you Hutan, in regards to the graphs, are we comparing the red lines between subjects and controls?

Could it have been the prohibitive cost? Were the long-covid patients required to purchase it? Would allegiance to your doctor matters when it comes to participating in a study like this? Long-Covid patients would not have such allegiance or connection with the doctor.

I will have to replay that, I could not watch any of the morning presentations because it was too darn early for my time zone.