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  1. M

    Sore throats swollen glands

    re probably salivary glands, that's a joke. As a teen I had stones in my salivary glands, which were severely acting up every time I ate acidic food- not the same thing and not the same location. (My salivary glands were removed).
  2. M

    Covid-19 vaccination experiences

    this is another topic, but locally we are being told to not use emergency rooms for things that could be dealt with in primary care. The problem is that oftentimes, the family practitioner is out of reach (appointment weeks away) and there is no intermediate for semi-urgent matters (say...
  3. M

    Sore throats swollen glands

    Agreed. Some like me have sore lymph nodes, but not significantly swollen enough for a physician to be alarmed or even noticing
  4. M

    Sore throats swollen glands

    research is looking at proteomics, metabolomics and entire lymphocyte populations before and after exercise. This is where we will get answers.
  5. M

    Covid-19 vaccination experiences

    Just thought I'd share here. Got the bivalent booster some 2.5 days ago and have had fevers and chills, sweats, feeling drunk and foggy, mild chest pain, increased POTS symptoms, some shortness of breath on walking that I did not have pre vaccine. None of that happened with my 2 vaccines and...
  6. M

    Research priorities for ...(ME/CFS): the results of a James Lind alliance priority setting exercise, 2022, Tyson et al

    On the good news side of things, there are no priorities surrounding psycho-social, rehab and soft targets. Patients have spoken, biological studies are needed and overdue. I hope that the funders of research will listen and direct funding for advancement of biomedical knowledge, and starve...
  7. M

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Hey Brian, thank you for the visit! When you say he found "it" in about 10 ME patients, could you estimate out of how many total? just a ballpark ;-)
  8. M

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in ME/CFS - Pereira, Bateman et al, 2021

    I made the comment that I recognized that Fitbits can be inaccurate, and the example I gave her was simply riding my scooter on the sidewalk, with the Fitbit recording steps for each cracks of the side walk. It prompted her to bring up that they are working (or already have) an ankle device...
  9. M

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in ME/CFS - Pereira, Bateman et al, 2021

    I attended. You should be sent link to recording.Only 8 attended. They were set up to do CPET but they had trouble with their machine and had to abandon testings. She mentioned that CPET testing would have been great but you need to be set up with appropriate staffing that has expertise and know...
  10. M

    Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in ME/CFS - Pereira, Bateman et al, 2021

    here is the list of author matching the initials, and their affiliation: Gerard Pereira1*, Hunter Gillies1, Sanjay Chanda1, Michael Corbett1, Suzanne D. Vernon2, Tina Milani2 and Lucinda Bateman2 1Cortene Inc., Burlingame, CA, United States 2Bateman Horne Center, Salt Lake City, UT, United States
  11. M

    USA: News from #MEAction

    Unfortunate timing to call for attention on the same day that the media and honestly most of the planet will focus on London for the late Queen's funerals.
  12. M

    Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al

    thank you for explaining, @Jonathan Edwards, that is very kind.
  13. M

    IACFSME 2022 Virtual Medical Conference: Day 3 Presentations: 29 July (9 am to 4.40 pm EDT)

    I do not believe that DeMeirleir made mention as of whether he has conflicts of interests or not. I am not sure whether he has shares, owns or is an associate of Red Labs, which has a lab both in Belgium and conveniently in Reno Nevada where he works too. Red Labs' website does not disclose who...
  14. M

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    To be fair we have not listened to Dr Bateman while she explained her slide. I am not pro-BPS not one bit, but I know that Dr Bateman is an ally. Also I know that OMF does not flirt with BPS and who they invite to share at their meeting does not necessarily represent who they are. Note that the...
  15. M

    Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al

    Remember that Rituximab eliminates CD-20 B-cells and not plasma cells and other cells which can be a driver to inflammation and pathogenic mechanism of ME. We have yet to find what pathway to disease is wrong. We are still unfortunately in the early days of finding out. P.S. Willing to stand...
  16. M

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Anxiety and Type A personality, really?
  17. M

    A drug free solution for improving the quality of life of fibromyalgia patients (Fibrepik): study protocol... (2022) Chipon et al.

    Full title: A drug free solution for improving the quality of life of fibromyalgia patients (Fibrepik): study protocol of a multicenter, randomized, controlled effectiveness trial This is a study protocol about the use of a device and coaching. Abstract: Background Fibromyalgia is a form...
  18. M

    Symptoms in women with fibromyalgia after performing physical activity: the role of pain catastrophizing and disease impact, 2022, López-Gómez et al

    what kills me is that since FM is so prevalent (5% of population, mostly women, but perhaps more men with the loosening of the definition), where are the physicians, the psychologists, the allied health care workers (physiology, OT, nurses) with fibromyalgia and why is no one talking back?
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