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a follow-up tweet from Dr Prusty

I wonder what happened to the group of UK doctors who wrote a letter to a medical journal saying they were suffering from long term effects following their covid infection. Where are they now? How many of them recovered?

The problem could be compounded by delaying treatment by physicians who don't know any better and prescribe mindfulness before sending out for testing, starting pharmaceutical treatment or referring to a specialist. It could be a delaying tactic in order to save money (particularly for those in...

that's a big claim. I wonder whether ICU's from around the world told their patients to meditate non-stop in order to get better and then later blame the patients for dying? I have a hard time wrapping my head around this very fact that you can meditate your illness back to health. Nope. Leave...

Mindfulness Meditation Interventions for Long COVID: Biobehavioral Gene Expression and Neuroimmune Functioning Nicole Porter *, Leonard A Jason * Center for Community Research, DePaul University, Chicago, IL, USA *These authors contributed equally to this work Abstract: Some individuals...

First I didn't open the link and have not read the paper. I agree that the number of steps does not reflect that of a moderate or severe patient. I am reminded of an imaging paper mentioning that patients with ME activated more brain regions than healthy controls for a similar cognitive...

Guys. You got it all wrong. Cake is good for us PWME... Eat cake, get better :cake:

bump: This person posted it on Twitter the other day:

Who would like to visit the department of psychosomatic medicine, raise you hand? ... Anyone?

what did I miss?

Saying a lil prayer for objective outcome measures, diagnosis by qualified physician, placebo-controlled trials. I am not sure how you can control for selection bias in this kind of study design.

I found this from this tweet: CORA stands for "Congresses on Controversies in Rheumatology and Autoimmunity" and will hold their next conference in late March next year in Italy. I looked up their agenda and the first item to be discussed is this one: from this link...

The Moderna booster by itself was not an easy one for me- Not exactly sure why I had such a response after 3 relatively easy shots before. Take it easy.

A lot of the symptoms faded, thankfully but not totally. I recovered function but tire easily and need to be careful about my energy. I do not regret getting it, and will certainly get the next shot, but would not take the flu shot any time soon (due to the symptoms I had with the latest booster...

It's dismaying to see researchers and clinicians discovering a new disease and making observations that us patients with ME (and their ME experts) have known for several decades. Yes, sleep is disrupted. And no, the "fatigue" is not due to the lack of sleep. Yes, people get worse after...

Exactly. They would have to compare LC patients with ME pts with similar onset date.

That work continues- These patients and their peer controls at the university are being longitudinally studied

Long COVID: defining the role of rheumatology in care and research This is a commentary in the Lancet, advocating for rheumatology to be involved in the care of Long-Covid patients. Right... And you'd think that they can say no to ME but say yes to LC? Right. And you think you can do all...

I think that there are different groups out there, some promoting the ICC as the purest of the pure ME according to them. The ICC does exclude some patients (I am one of them). To be honest, until we have a diagnostic test and biomarkers that can discriminate severity and subgroups, there will...

Wow. They are disappointed that weight loss, acupuncture and bath therapy did not make the cut despite scientific literature pointing to 'significant improvements'. Could it be that in real life, the effect is blunted?