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Remember that sodium is highly regulated in the body, evidenced by a really tight normal value range in the blood. It means that an excess of sodium intake would be excreted via the kidneys.

There is a fascination with self-reported questionnaires to interpret the symptoms of patients. I am not sure I can handle filling out one more questionnaire. I very much agree with you.

Moved post Dr Claire Taylor has a thread regarding this paper on twitter:

This is interesting but the conference was last year- 2021- did they not publish since then?

@Andy, man. You re sure pulling the most disturbing papers out of pub med. :whistle: Are you doing a PhD in FND and other crazy sh*t name calling diseases that don't exist? OK folks... carry on. :D

Got it. Super frustrating. Please take good care of you and no need to apologize.

which subset are you suggesting, though? The cognitive dysfunction "subset" can be as wide as can be- for some it is sensory- can't handle light, sound, touch. Some have trouble talking, some crash when talking too much. Some crash when they attempt multi-tasking. Then there is the...

Because fibroids can bleed or grow back and she may have decided her best option at that stage in her life was to return the part to the manufacturer. The decision to proceed is obviously between the patient and her doctor.

Hello @Hubris, thank you for this thread. I got sick in 2009, and in the early years I wrote advocacy letters to my government about ME. My letters were cogent, polished, and elegant. I have lost a lot of brain cells since then. Reading is very difficult, thinking is also hard, and doing math...

Abstract Background Neurological symptoms associated with coronavirus disease 2019 (COVID-19), such as fatigue and smell/taste changes, persist beyond infection. However, little is known of brain physiology in the post-COVID-19 timeframe. Purpose To determine whether adults who experienced...

Did these physicians rule out myasthenia gravis? Could it be a possibility? I find it incredibly sad for the patient to have post-op deficits that are not typical of the surgery performed and that it is believed to be all in her head. And what more, the paper seem to be extremely identifying...

who's going to break it to them...

Thank you @Trish and @Hutan for sharing your views. I did not go any further than the abstract. When I read this though, I see through the lens of someone who's been sick for a decade and who had to self-manage, understand what is going on in my body, and "fight" with doctors throughout the...

The choice of words used in the abstract stink, from where I am at. Basically you are empowered if you are compliant to treatment- 2 opposing concepts in my view. You are empowered if you are self managing successfully and if you have "gained power" over your disease. What happened to those...

well, my dentist proceeded with the implant, and in order to proceed she needed said CT.

It has happened to me recently. I needed to book a CT scan of my jaw for upcoming dental work, in a different location than my dentist's office. I booked the appointment but the day before said date I was called back and I was told I didn't need to come, because I went already :walkingdead I...

Very ironic considering that the James Lind Alliance just determined what the research priorities were for ME- While the project above does not mention ME by name, there seems to be a go-around by calling it something else.

I worry about you not getting the results that you want, for one, from a doctor that might be skeptical and that may not have the equipment needed and the understanding of ME. It is a lose-lose situation that you are putting yourself through, and even if you have recovered before, know that it...

It's also a waste of money particularly if performed by a random doctor and increases risks for a major crash which can leave them worse. Agreed. It's utterly frustrating to face uncertainty but also to be gaslit by the health care system. Personally I got better mentally when I gave up...

How to warn every patients not to participate in this study?