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  1. J

    Crowdfunding for David Tuller starts October 1st 2024

    @dave30th Bumping my earlier post in this thread regarding the Long Covid treatment center at Mount Sinai (USA) that is promoting unevidenced treatments. ——————- Possible for you to do a {skeptical} deep dive into this Long Covid treatment center that your friend David Putrino is spearheading...
  2. J

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Ron and I spent several days last week with Rob Phair and Amanda Ooi, who does experiments in the lab, in Salt Lake City with the great scientists there who are working on the itaconate shunt theory and finding ways to block it. 1/2 Janet Dafoe Ron and I have made a video updating everyone...
  3. J

    Crowdfunding for David Tuller starts October 1st 2024

    @dave30th Possible for you to do a {skeptical} deep dive into this Long Covid treatment center that your friend David Putrino is spearheading. Your other friend Jo Edwards is not very keen on the approach. Thank you. Thread here...
  4. J

    Do you believe that “viral persistence” is the cause of ongoing MECFS and LC?

    Dr. Maayan Levy joins the Arc Institute as an Innovation Investigator, with a Stanford Pathology appointment expected in January 2025. Her work on viral persistence and serotonin reduction in #LongCovid remains highly impactful. probably goes under the Arc thread.
  5. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    From Sick Times article: “If this becomes a location clinic for every Long COVID patient in the world, I would say that our mission has failed,” Putrino said at the conclusion of the opening event last week. “This, I hope, is the clinic that’s going to launch a thousand clinics.” Hmmm…
  6. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    In this article, @PutrinoLab responds to a patient who attended their facilities and dealt with unmasked staff by suggesting it must have been people in another office This is dishonest. I learned about this incident and informed him at the time. It was his own staff…
  7. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    It's psuedoscience--see Jo Edward's post above.
  8. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    I guess my feedback wasn’t taken into consideration.
  9. J

    The Concept of ME/CFS

    Yes, agree that cognitive disturbances should be included as this symptom disables most people with ME/CFS.
  10. J

    The Concept of ME/CFS

    “People with ME/CFS say they do not have fatigue in its usual sense(s). “ I have fatigue/tiredness/exhaustion/lack of energy in what I believe is the usual sense.
  11. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    A good strategy BEFORE hiring a “scientific director” would be to read their resume and then to read all or most of the publications they list on their resume. People on selection committees might conclude that a certain candidate might not be a good fit for scientific director if they did the...
  12. J

    Aripiprazole - Abilify

    I had withdrawals but others did not.
  13. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    CoRE: a new clinic at Mount Sinai providing innovative care for LongCovid, Lyme+ and related conditions https://polybio.org/polybio-mount-sinai-collaborators-open-state-of-the-art-center-for-patients-with-long-covid-and-related-conditions/ Going backwards.
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