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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Lunatic anti-vaxxer RFK, Jr. says hes going to immediately STOP the DEVELOPMENT of NEW DRUGS for cancer, Alzheimers and other illnesses,... for eight years.
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    The good news keeps on coming! Jay Bhattacharya, an NIH critic, emerges as a top candidate to lead the agency https://wapo.st/3Z79RZM
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    And of course the worst has come to pass…..
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    https://www.nytimes.com/2024/11/12/health/robert-kennedy-jr-fda.html?unlocked_article_code=1.ZU4.qCQ_.6_cbG3x2rUzV&smid=url-share Kennedy’s F.D.A.Wish List: Raw Milk, Stem Cells, Heavy Metals
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    This scientist treated her own cancer with viruses she grew in the lab

    https://www.nature.com/articles/d41586-024-03647-0 Virologist Beata Halassy says self-treatment worked and was a positive experience — but researchers warn that it is not something others should try.
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    Whitney Dafoe Updates

    Whitney Dafoe @DafoeWhitney I have a severe iron deficiency. There is a nationwide shortage of the one brand of iron infusions my insurance will cover. They won't cover the other brand. That brand costs $1800 per infusion. In Germany, an iron infusion costs €8. WTF is wrong with this country...
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Robert F. Kennedy Jr., Foe of Drug Makers and Regulators, Is Poised to Wield New Power President-elect Donald Trump has encouraged him to “go wild on health” but has not made clear what role Mr. Kennedy will play...
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Moderation note: Please note the title of the thread and keep on-topic. Restrict your posting to information that is highly relevant to ME/CFS and Long Covid. Consider our rules, particularly this part of Rule 11, before posting: ******* Not good. https://wapo.st/3UEZWaZ Florida surgeon...
  9. J

    The Concept of ME/CFS, 2024, Edwards

    It’s a preprint.
  10. J

    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    They are just going to waste a sh*tload of money that could be used to fund something useful.
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    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    Why do this since Simmaron is also doing a trial?
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    Rapamune / Rapamycin/ mTOR

    This person (25M) went from being bedridden with severe #LongCovid and PEM for 2.5 years to playing basketball within a few weeks of starting Rapamycin! It cured his PEM. Apparently a Rapamycin clinical trial will also start in the US come January.
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    USA: Schmidt Initiative for Long Covid

    Why read the existing literature when you can re-invent your own wheel!! Everybody with their own wheel!
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    Crowdfunding for David Tuller starts October 1st 2024

    @Trish @Hutan could you please make a separate thread on the BioBS/BPS topic from the posts here as these are not directly relevant to Tullers fundraising—thank you!
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    USA: Schmidt Initiative for Long Covid

    Agree. Now we got Khosla Ventures and Google (and partially Steven A Cohen*). It’s a start. * funding some more dubious stuff https://www.s4me.info/threads/core-long-covid-lyme-and-related-conditions-clinic-at-mt-sinai-hospital.40605/
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    USA: Schmidt Initiative for Long Covid

    https://silc.org/our-work/ Also posted under a different thread by @Dakota15 What We Do The human and economic impacts of Long Covid are far-reaching, ongoing and devastating for patients, their families and their communities. The complexities of Long Covid—that it requires multiple...
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    Crowdfunding for David Tuller starts October 1st 2024

    Fair enough. I guess my concern is that the BPS stuff is obvious BS—whereas the BioBS stuff is shrouded with the air of respectability, as in this is “real science”, which in my opinion makes the BioBS stuff more pernicious.
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    Should We Have a Better Term than Brainfog?

    Similar issue in Norwegian language? https://www.s4me.info/threads/news-from-scandinavia.647/page-95#post-526025
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