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I remember getting a little heartburn about one of the things Solve funded, but I don’t remember what it was. Don’t necessarily agree that OMF is closed off—at their non-public research meeting they tend to invite a variety of researchers but I was surprised that the Norwegian group wasn’t at...

This year I gave all my donation to OMF. Another option is Simmaron https://www.simmaronresearch.com/

https://thedispatch.com/article/mainstreaming-junk-science/ Mainstreaming Junk Science Robert F. Kennedy’s views on health may have more popular support than we think.

Merged He Built a Wellness Empire While Adventuring With Robert F. Kennedy Jr. Dr. Mark Hyman, a “functional medicine” proponent and longtime friend of Robert F. Kennedy Jr., is finding powerful allies in his bid to treat disease with blood tests and supplements. Ugh! By his mid-30s, after...

Vertex Pharmaceuticals (VRTX.O), opens new tab said on Thursday its experimental non-opioid drug met the main goal of a mid-stage study but showed little difference versus a placebo in reducing pain, sending its shares down nearly 14% premarket...

Is there an English language version?

Here is a link to a video about Ron Davis and Rob Phair’s recent work on the itaconate shunt with the scientists at the University of Utah. This was a talk we gave at the Bay Area MECFS support group which was recorded over Zoom.

Long COVID appears to be driven by ‘long infection’. Is that what the science says? https://marcveldhoen.substack.com/p/long-covid-appears-to-be-driven-by

Don’t disagree with this. But the issue (maybe my issue) is that there is basically zero support for BPS stuff from the ME/CFS “community”. By contrast there appears to be significant support for the current cohort of Long Covid researchers despite the fact for the most part, most/many of them...

1 sometimes donors want to be anonymous. 2,3 ? 4 Yes! OMF has triple match through today, and I am donating.

Although this forum is highly focused on the nonsense of the BPS brigade, I submit that at this point what I call BioBS, or the low quality ME/CFS & "Long Covid" research is much worse overall for the patient community. Why? 1. Although historically BPS had a lot of "scientific" backing, it...

Long a ‘Crown Jewel’ of Government, N.I.H. Is Now a Target The agency long benefited from broad bipartisan support. But Republican criticism has intensified, and new choices for top health posts hope to upend the organization...

Moved post FWIW, some patients have experienced reduced brain with Fycompa Low dose fycompa (2mg) was a game changer for me for reducing „brainfog“ and migraines.

https://www.medscape.com/viewarticle/new-data-most-promising-treatments-long-covid-2024a1000lm5 No need to read this—I promise! (Might need to logon to medscape).

Honestly, I'd much have a treatment than a lot of publications. Treatments are the correct metric (for me), not publications. Preparing high quality manuscripts for publication takes a lot of time, and is not always the best use of their time, especialy if there are not significant findings...

Open medicine foundation because it’s an international multi investigator multi center organization. I think he is aging at the same rate we all are! Laurel Crosby can definitely spearhead the BH4 work, and if Ron were to leave us, the various collaborations (University of Utah?) would...

It’s not a good drug candidate. https://www.s4me.info/threads/wasf3-disrupts-mitochondrial-respiration-and-may-mediate-exercise-intolerance-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-hwang-et-al.34776/page-5#post-489247

https://onlinelibrary.wiley.com/doi/10.1111/joim.20033 Abstract Background Bacillus Calmette–Guérin (BCG) injected during the COVID-19 convalescence period was safe and enhanced recovery from anosmia and dysgeusia in the acute phase. Objectives To report the long-term results of the BATTLE...

Do you recommend reading this or will it just make my blood boil?

Stop RFK war room is launched https://www.politico.com/live-updates/2024/11/18/congress/health-groups-aim-to-stop-rfk-00190215