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Give it all to Fluge’s group in Norway—much more likely to have treatments.

Michelle James is great. https://med.stanford.edu/profiles/michelle-james You could search this forum for comments on Kaufman

Trump Withdraws U.S. from World Health Organization Public health experts say U.S. withdrawal from the W.H.O. would undermine the nation’s standing as a global health leader and make it harder to fight the next pandemic...

I used these guys https://kashilab.com/hla-transplant/hla-testing-typing/

Ron Davis's message of hope for 2025 and plea for help by Ronald W, Davis, PhD. Dear ME/CFS Community, I think of you all every day as I work to untangle the complex molecular basis of this horrific disease. We have made a lot of progress lately, and many scientists around the world are...

Agree. I got this info via @Arfmeister Hadn’t heard of it before today.

Probably several months, maybe ~4-6 @leokitten has more experience. After it pooped out for me I didn’t try again. I would definitely try to keep the dose at the absolute lowest level that gives an effect.

https://ctv.veeva.com/study/this-is-a-study-for-non-hospitalized-adult-participants-with-symptoms-of-severe-fatigue-from-post-co

Abstract High-dose cyclophosphamide without stem cell rescue is a radical therapy for refractory autoimmune diseases. The objective was to review the results of high-dose cyclophosphamide without stem cell rescue in autoimmune diseases. PubMed, Scielo, and Embase databases were systematically...

Today, Arc announced it is joining forces with @NVIDIAHealth to develop powerful computational tools that will help researchers everywhere explore and understand living systems in ways previously impossible.

Why do so many of these fully recovered people become “wellness coaches”? There are so many careers to choose from….

Yeah, some interesting comments, including some on “Long Covid” and Lyme. Have to say that I’m not particularly optimistic about any new candidate drugs in the pipeline. I posted about the Vertex drug here (not different from placebo)...

Good in depth article—mentions fibromyalgia. https://www.nytimes.com/2025/01/12/magazine/chronic-pain.html?unlocked_article_code=1.ok4.Ggyl.jPE4qqT8991M&smid=url-share

“All this” referring to the psychobabble program or to Nancy Klim*s’ cutting edge research program?

Bumping this thread so people see this. Strange stuff, probably something like Lightning Process. “Institute of Neuro-Immune Medicine Embraces Mind/Body Approach Lastly, Dr. Klimas didn’t mention it, but an email today indicated that the Institute for Neuro-Immune Medicine is branching out and...

Merged thread “What’s Up, Doc?” Nancy Klimas on Viruses, ME/CFS’s Greatest Need, and Her ME/CFS Clinical Trial—Cort Johnson https://www.healthrising.org/blog/2025/01/10/klimas-ebv-clinical-trials-chronic-fatigue-syndrome/ Lot of stuff in here—most of it not my cup of tea. NK has been talking...

Even though this is a review article it still would be helpful to have some data in the abstract to demonstrate how highly disregulated the metabolism is.

ALS got huge amounts of funding from the ice bucket challenge—like $115 million— these people didn’t have ALS. https://en.wikipedia.org/wiki/Ice_Bucket_Challenge

Maybe—he tweets about RFK Jr type stuff—dangers of seed oil, plastic chemicals in food, etc. I can’t DM him because I don’t have a verified x account, otherwise I would.

I think there are 2 issues—not directly addressing OP question. 1. Do small donations matter? A google search says yes. E.g. https://neonone.com/resources/blog/small-donations/ 2. Big donations definitely matter hugely. In the USA, Vinod Khosla and Steven A Cohen...