Search results

Robert Phair believes it could be a type of a metabolic trap. Apparently this hypothesis has not been falsified. Maybe immune dysfunction caused the metabolic trap but now it’s essentially a biochemistry issue—something like that.

See here https://www.s4me.info/threads/rational-hope-of-treatment.42417/page-3

I don’t disagree with this and I don’t mean to seem doomerish. BUT if MECFS turns out not to be immune mediated and new small molecules need to developed, then I think that line of treatment will be a long way away. This is only my opinion so take that with a grain of salt. ETA. By contrast...

What do you mean by disease memory?

Now the other way—disease with treatments but with no known mechanism. Deep seek Certainly! There are several diseases for which effective treatments or cures exist, but the exact underlying mechanisms remain unclear or only partially understood. Here’s a list of notable examples: ### **1...

Here is deep seek Certainly! Here is a list of diseases where the underlying mechanism is well-understood (or at least partially understood), but there is currently no effective treatment or cure: ### **Neurodegenerative Diseases** 1. **Alzheimer’s Disease** – Mechanisms include...

Posting this for those who believe it will be easy to find a cure for MECFS once a mechanism is found. From Chat GPT Here’s a list of diseases with a well-understood mechanism but no cure or effective treatment: Neurodegenerative Diseases: 1. Alzheimer’s disease – Progressive...

Posted under Germany, but giving it its own thread https://events.mecfs-research.org/en/events/conference_2025 Agenda https://events.mecfs-research.org/en/events/conference_2025/agenda Features everybody’s favorite serious hard-core ME/CFS researcher David P*trino. 12.05.2025 - Monday...

I guess I’m saying I like it when researchers explicitly state which specific drugs they recommend for trials (even if they end up being wrong). In most of these papers I see a lot of handwaving or very vague recommendations like “anti-inflammatories”, etc.

No comprendo “another thing”.

OK but I meant did he mention a specific drug name? I’ve never heard him suggest a specific drug.

Did Lipkin actually have any suggested drugs to trial? I don’t think so.

Sad! In 2007, more than 1,440,000 Americans were diagnosed with cancer. Dawn Kali was one of them. Then in her mid-30s and raising three kids, Ms. Kali’s natural warmth and openness made her a popular waitress at the raw-food restaurant where she worked in San Francisco. When her doctor told...

Baricitinib trial is moving forward, confirmed by Jaime.

Jaime didn’t have an update.

Ha! You read my mind. I was going on here to ask about the Bari trial. Maybe @Dakota15 knows? I’ll send an email to Jaime S.

The Vaccine Discourse Is Broken Discusses this paper. https://www.nytimes.com/2025/03/26/opinion/vaccine-study-debate.html?unlocked_article_code=1.604.VyHI.Vtk4JyFMWKiF&smid=url-share

Conclusion: This study suggests that #LongCovid is at least in part related to BBB impairment allowing influx of potential toxins and impaired glymphatics impairing appropriate efflux of such toxins. 5/

https://wapo.st/4c2BMPr Vaccine skeptic hired to head federal study of immunizations and autism A long-discredited researcher and vaccine skeptic will conduct a government study on whether vaccines cause autism. When does this end?

Bluesky post from Jaime S . Not sure how to post the Bluesky things. Folks, very bad news for #LongCOVID. Deep breath. 29 awarded grants to do with COVID and Long COVID have been rescinded by NIH...