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  1. J

    Why can't good ME/CFS researchers get more funding?

    The fringe research outfits will close shop once real pharma gets involved. Does multiple myeloma/multiple sclerosis have these fringe research groups involved—no I don’t think so. JNJ loves multiple myeloma research cause it makes billions from it (Tecli and Dara). And they can spend millions...
  2. J

    A Study to Assess Anktiva in Patients With Long Covid-19. (INTERRUPT_LC)

    That Gustavo guy is zero evidence. I thought maybe he disappeared, but I guess not.
  3. J

    Why can't good ME/CFS researchers get more funding?

    This is sort of a good question, and partially the answer depends on the phrase “good quality”. I mean the research funded by a organization will reflect the biases/culture/interest of the core group. For example, AP believes LC ME/CFS is caused by viruses or other microorganisms. So she looks...
  4. J

    Why can't good ME/CFS researchers get more funding?

    This conversation has been split from Whitney Dafoe Updates How did “Polybio” become a multi million dollar research foundation “based on viral persistence”? How did David P become an overnight world expert on ME/CFS despite no background in immunology? How did AP become the scientific...
  5. J

    Works of fiction where characters have ME/CFS

    I watched this last night and thought about this also. Her character wasn’t particularly well developed. If she is a great cellist and presumably pretty well educated, why would she believe a local priest could cure her? But the plot of this movie was way too convoluted for my brain. First...
  6. J

    In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al

    Yes Anktiva. @ryanc97 is the expert here. https://immunitybio.com/immunitybios-anktiva-reverses-lymphopenia-and-extends-overall-survival-in-patients-with-advanced-non-small-cell-lung-cancer-resistant-to-checkpoint-therapy/ Also Blueberries.
  7. J

    The Born Free Protocol

    This Doc apparently treats patients with BF
  8. J

    The Born Free Protocol

    The host of the program is vehemently opposed to equating ME/CFS with LC.
  9. J

    The Born Free Protocol

    White lab coat comes up….
  10. J

    The Born Free Protocol

    Joshua giving a seminar on BF now.
  11. J

    Vagus nerve-mediated neuroimmune modulation for rheumatoid arthritis: a pivotal randomized controlled trial 2025 Tesser et al

    Abstract The inflammatory reflex, in which vagus nerve signaling modulates cytokine production, is dysregulated in rheumatoid arthritis (RA). RESET-RA, a pivotal, double-blind, randomized, sham-controlled trial, evaluated a vagus nerve-targeted neuromodulation system for RA in 242 patients with...
  12. J

    The Born Free Protocol

    But this same guy endorses this (in his Twitter bio), which is also full of bogus stuff. https://helpforlongcovid.com/
  13. J

    Bringing natural killer cells to the clinic: Opportunities beyond cancer 2025 Cayotte et al.

    Natural killer (NK) cells are cytotoxic and cytokine-producing innate lymphocytes with established roles in antiviral and antitumor immunity. In recent years, the biology of NK cells has been exploited in innovative cancer immunotherapies, leading to clinical advances including allogeneic NK...
  14. J

    Trial Report Plasma cell targeting with the anti-CD38 antibody daratumumab in ME/CFS -a clinical pilot study, 2025, Fluge et al

    Can’t antibodies persist in the blood for a while even if the cells that produced them are no longer there?
  15. J

    Whitney Dafoe Updates

    Mentions that the born free protocol probably helped him {{unfortunately?}}. Thread here: https://www.s4me.info/threads/the-born-free-protocol.39252/
  16. J

    Whitney Dafoe Updates

    He is speaking now!!! After 12 years!
  17. J

    The Exhilarating movement from treatment to cures of autoimmune disease—Eric Topol

    https://open.substack.com/pub/erictopol/p/the-exhilirating-movement-from-treatment?r=7y4i4&utm_medium=ios&shareImageVariant=overlay
  18. J

    Teclistamab plus Daratumumab in Relapsed or Refractory Multiple Myeloma 2025 Costa et al.

    https://www.fda.gov/news-events/press-announcements/fda-proactively-awards-national-priority-voucher-based-strong-phase-3-study-results
  19. J

    Opinion: Why I support the use of ME/CFS as opposed to any other name

    Also another practical issue is that if you call the disease ME it makes it really difficult to do google/database searches because “me” is a top 10 word in the English language. MZ—“minimally zippy” or “missing zest”, however, would be fine.
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