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From the first days of Long Covid, I have seen physicians quoted saying things like "we've always known about post-viral fatigue". And yet you have these quotes, and a history of failure, that show the exact opposite. Medicine was completely caught by surprise on this, have still not left that...

Unfortunately, this is not an evidence-based assertion. It's obviously true, but there is no way to convincingly reference the literature on this. Of course this is also widely known and accepted about most diseases, but there also isn't any evidence of this, it's just reason and common sense...

Every other country manages to fail the same way without a figure like Wessely. He probably drives a lot of it in the UK, but it would be identical whether he, or any of his collaborators, was there or not. Systemic failure is the opposite of a single point of failure: every single point will...

Betsy Ladyzhets write for the Sick Times, which does very good reporting on all things chronic illness. If someone wants to chip in.

Statement from "Supporting Healthcare Heroes UK" on the COVID inquiry Module 3 report, which, if I understood correctly, especially laid bare how the advice against airborne transmission was a political decision, not a credible, scientific one...

Practice nurse: Chronic fatigue syndrome https://practicenurse.co.uk/articles/miscellaneous/chronic-fatigue-syndrome From 2012 but I haven't seen it posted. It's pretty awful.

It's hard to see the value of reviewing and comparing guidelines when they are all completely inadequate, which doesn't seem to have been considered here. It all ends up like a bunch of students cheating on each other when no one has a single right answer. After six years, everything is still...

Between silence and solutions: a global guideline review of long COVID care and services in Australia https://link.springer.com/article/10.1186/s12913-026-14268-w Background As the acute response to the COVID-19 pandemic shifts to long-term management, the lasting effects of infection are...

By the usual standards of 'pragmatic' evidence-based medicine, this is relatively high quality. Which is a low bar, the lowest bar imaginable. Not at the level of a basic drug trial, but far better than usual. It's actually controlled and double-blinded. It has no plausible working mechanism...

In their bubble they somehow find it reasonable to define fatigue as a mental illness and no one objects to it, so from there there really was nowhere to go that wouldn't end up producing more nonsense. Fatigue. A mental health disorder. Not from 1746. Or even 1836. In 2026. Somehow it feels...

This is really a foolish mess. Not much different than how things like domestic abuse correlations are used to argue for some role of psychological distress, when there are vastly different levels of abuse, going from very physical to none. As foolish as making a review of drugs based on form...

Lots of useful quotes in there. I generally find that the only useful bits of information come from simply quoting patients themselves, unfiltered and with no third-party interpretation. It completely debunks all the usual tropes from our biopsychosocial overlords, but that's nothing new, they...

Can't translate (PDF), described as "A parliamentary inquiry from the CDU Hamburg regarding the care of #MECFS sufferers in Hamburg. The inquiry addresses the dramatic situation of (Christian Zacharias)."...

Oh it's usually included in guidance. It should be considered. It clearly isn't, in general and in this cherry-picked review. Even Cochrane themselves don't apply it to their own reviews, even major academic journals that should know better don't care much about it, an arbitrary system of rules...

I don't really see how, really doesn't fit. I think it's just accepted that blinding is not possible and so they simply don't discuss it much, even though it would be a disqualifying flaw that anyone would point at if it the subject matter was considered serious. It's all just a function that...

It completely glosses over the whole open label with subjective outcomes, which should downgrade everything to worse than a coin toss. Not as bad as a coin toss. Worse. Because of all the bias. It's one of the most absurd things in the history of professions that in dealing with treatment...

In my case it might be a case of labyrinthitis that happened not long after I started having health issues and recurred more or less annually for several years. It still sometimes causes the odd spinning if I move my slightly in the wrong (usually to the right) direction, so might be independent...

"The evidence is awful, here's why we recommend it anyway". :rolleyes: Says who? Based on nothing at all. Even without PEM the evidence is comparable to what one would get out of expensive shaken water. Pure wishcare. The rest isn't any better, including the medication, and vaccination has...

Weird stuff. Disequilibrium seems to be mostly analogous to lightheadedness here, but also mostly analogous to what orthostatic intolerance describes, so mostly circular. I have no idea how they make out that this is a primary determinant simply because it's rather common. Thirst is a common...

So it seems that while there are good bits, excellent even, they are completely undone later on. That's just great. This is all very smart. I am not being the least bit sarcastic here. :rolleyes: