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Stamina, the ability to sustain effort, really seems to be key here. I can't really remember seeing it outside of a few comments on this forum. But I don't think it has much clinical meaning. Real life meaning, for sure, definitely very relevant, but not much way to get this across.

I assume this is the angle they are pursuing. They will pretend to accept that the immune system is relevant, but that it's dysfunctional because of stress, whatever that means anymore. It's been extremely popular all over again with Long Covid, so easier to sell than cold water in a desert...

I doubt it. Most of the BPS quacks have done some low quality studies like this, usually useless reviews like this. Just enough to point at so they can pretend they are not zealots pushing their harmful nonsense. It's not as if this study adds anything, but it is an easy citation on their...

Well, this is not surprising but still very demoralizing. $1.15B and absolutely nothing to show for it, and nothing they describe here convinces otherwise. The NIH has completely dropped the ball here, and they can't use RFK Jr as an excuse, they started it all wrong and haven't put in the effort.

Framing this as some feel-good "justice was finally achieved" is frankly disturbing as hell. This is technically no different than finding hundreds of thousands of people had spent decades in prison on fabricated evidence, with no one blamed for it, and zero actual justice done to anyone, no...

Of course. It's not about not using fatigue, but rather how much confusion about the condition the term means when it's made to be the defining feature of the illness, but also with how it conflicts with medical beliefs about how to deal with fatigue. Fatigue is just too common in health care...

I define it as a rapid increase in fatigue, especially disproportionate from effort. So it's about a change in symptoms, more than the symptoms themselves. It's what de/acceleration is to speed. Of course the symptoms themselves are very important, but the rapid shift is very different than how...

Not as a replacement for the concept, but rather as a more relevant term to define the illness. Because fatigue isn't always present. I didn't have much fatigue for most of my early years, but I did have more fatigability than normal. Fatigue is obviously a major symptom and aspect of the...

The brazenness of the lying, the gaslighting, is really something. Cochrane pulled the same thing, absurdly saying that placing 'CFS' under common mental disorders doesn't mean what they obviously mean by that. Shows how rules and everything professional are just a bunch of empty words if they...

Recently, a few discussions over terms have caught my attention on two terms that I think can make discussions of ME/CFS make more sense. Obviously terminology is a fraught issue, we are still tainted by the 'chronic fatigue' label after all this time, and this is mainly because to retire...

Maybe, in addition, but pain and malaise and other sickness symptoms are more than enough to explain this behaviour. For sure I have no other reason, and I've never really come across anyone saying different as far as their own experience goes.

I mentioned this a few times previously, but this is in stark contrast with most 'forensics science'. Most of it has been discredited, especially the magical mind-reading stuff like polygraphs, and its use has correspondingly fallen because justice systems want to avoid convicting innocent...

Probably not as long as Wessely remains popular. And even though he is hated by even more unrelated communities, he seems universally beloved by his peers. Somehow. I can't really figure out why, though, the man has no actual achievements other than being tasked by people to punch down and being...

This is fantasy. And weird. Why are humans so damn weird all the damn time?! You go back a century and silly people were putting smiley face masks on sick people to cheer them up. Nothing's really changed since. The undying belief that when you can't fix a problem, just make it an attitude...

That seems weird to me. It's the pain and malaise and other symptoms that cause the behavior, not something that happens alongside it.

Always, you find this complete separation of two mutually exclusive realities: the patients testifying endlessly about how disastrous it all is, the health care systems shrugging in response, not only indifferent to the fact that nothing is being done, but indifferent to having wasted resources...

The Secret was also a best-selling book. It's pretty much the same idea, but applied to wealth and success. It doesn't bother bundling up bad evidence, but it's not as if bad evidence matters. All of this would be embarrassing enough if it wasn't for the fact that most of the people who should...

The overall strategy has obviously been to simply make us so hated that no one would want to help us. It's the only thing they actually achieved, but they managed 100% at it. It's actually baffling that it worked, to be honest. The gullibility here is so high that it warrants massive audits...

On the rare occasion where I see Wessely's name outside of our community, wow is he hated by a lot of people. It's actually impressive, and the contrast it offers with the gushing praise he gets within UK medicine circles is the most impressive part. That really should be a big clue about what...