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Simple: a working quality control process kills the whole thing. Just like the scientific method is incompatible with validating magic. I assume everyone involved is aware of it, but everyone praises the emperor's magic robes and they don't want to pass for fools by pointing out that it's...

Not a chance. This is what makes it a double waste of resources. The gravy train of failure is too addictive.

Even by the standards of "Imagine a world"-based medicine, this is a new low. "Imagine a group of controls who would have done what we wanted them to do". How did they determine controls who would have? With our friends: lies, damned lies, and statistics: Why would a serious medical journal...

For sure there is clearly a dynamic where patients explain our experience, no one understands it, and so we shift to trying to match the language we think they expect. Pretty much. Symptoms and functioning are not clinically relevant since they don't light up anything about biology. Biology is...

They seem to be making a looot of assumptions. Even before the silly "breath retraining" nonsense. Unless I got it wrong, they defined hyperventilation not as an increase in respiration, but as a decrease in blood CO2, which they assume must be hyperventilation. Obviously this is not...

What a pointless waste of everything. This entire industry is a waste. Here they 'tested' this particular program. They concluded that they need to do it again. They will do it again. They can test another program. And another. Or another one yet. And a modified version of one. And a combined...

That would be the mode, the most common data point. Shame it's abstract only, can't really correct them on it, but obviously they made a mistake somewhere. The 1-255 range of aerobic sessions is wiiiiild.

Given the number of sessions over this period of time, no, it does not, and this is not the problem anyway. Those differences pretty much make it clear that it doesn't even achieve that, and it does nothing else. Plus, who even decides whether the supervision is 'careful', when it clearly simply...

I mean specifically on the basis of sharing or bringing fact sheets or information about the biology of ME/CFS. Because as far as I can tell, the discrimination against us is already total, on the basis that it doesn't even exist anyway, and it just makes no difference. Almost no one sees this...

One thing that is difficult here is that there is very little content to advocate with. Almost none, in fact. There hasn't been a single good news in decades. The overall picture is very bleak. The research landscape is even bleaker. Noting has improved at all. We can see the same thing in the...

And this is also the main message from the psychobabblers. The whole brain retraining and rehab scams are based on flimsy anecdotes. So clearly there is no actual objection for it within the medical profession. In fact, it's vigorously encouraged. It's a great example of how two wrongs don't...

And no one would need to do any of this if the fact that the psychosomatic models are bogus were accepted. The bogus models keep being promoted as effective, despite having been debunked. This is the main root cause, everything else derives from it. Medicine is supposed to be based on science...

Yes, but the medical profession is 100% hierarchically structured. Everyone who works in medicine is part of that hierarchy and system of checks and works as part of a whole. What one physician decides to do reflects on all, the profession is highly regulated and requires compliance with rules...

Is there any evidence of this happening? Because whew is this illegal and about as perfect a case of discriminatory punishment as it gets. Not that it would change anything now, but at some point when things shift someone is going to go through all of those and hit "delete all" on all of those...

5001st time might be the charm! Literally the same junk, presented as innovative, as is tradition. You'd think failure is almost an addiction here. Country promotes model project for seriously ill adults after infections...

Or the fact that symptoms fluctuate a lot over time. The only study I remember that did it correctly was the 2nd paper published by the Body Politic community, which tracked symptoms over time, showed how they can erratically come and go. It's been obvious for a long time now that this is not a...

Honestly, this is just sadistic. "It doesn't work, but we got them to sign a form saying it worked", or whatever. A lot of problems with humanity right now have to do with lack of shame. We would do so much better as a species if people doing shameful things would feel shame. I don't understand...

Better yet: "Starving people seek relief with dumpster diving".

Odd choice of specific examples that are mainly disability discrimination around mobility. There is a huge difference between this kind of disability and chronic illnesses, but they are trying to blend the two in ways that make it worse for everyone. Slapping Peter to push Paul in the same...

I think they do ask. And the response they get from eminent physicians is that there is a deficit of biopsychosocial, and therefore the solution is more biopsychosocial. This is the end result of the ideology, it only exists to keep expanding, that's the nature of a goalpost-moving model: the...