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  1. rvallee

    UK BACME ME/CFS Guide to Therapy 2025

    That's all they have left. And it's why CBT is becoming dominant over GET, in that it's no longer about making people physically fitter, but simply about getting us to understand that it's safe to be. Which is the old model anyway. This is also the dominant framing with all the brain retraining...
  2. rvallee

    UK BACME ME/CFS Guide to Therapy 2025

    That table is some grade A horseshit, truly impressive level of doublethink, and they don't even actually comply, even with their weasel words that NICE anticipated they obviously contradict both the letter and spirit, but it's not as if they care about being accurate or honest. But if there is...
  3. rvallee

    Prevalence of depression, anxiety, fatigue, and headache before and after long COVID onset: a case–control study in … Region Stockholm, 2025,Lindblom+

    And not just that but interpret things in a more or less coherent and cogent fashion. That's... odd. Although they still go for the traditional conclusions: But, no, they don't. For all the reasons they laid out in the quotes above. The questionnaires for those concepts aren't about those...
  4. rvallee

    "IBS - understanding the connection between the mind and the gut by Prof Nick Read" (IBS network magazine July 1999)

    Zero difference with the junk going on these days. Could be published next year with only 4-5 changes. And probably 5 years from, barring a dramatic change. Again, the crisis of lack of shame. This is deeply shameful, to see zero progress like this. No one is ashamed of parroting the same...
  5. rvallee

    Effectiveness and safety of exercise therapy in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A meta-analysis, 2025, Wei+

    And yet utterly indistinguishable from 99% of Western rehabilitation research, just swapping TCM with lifestyle and exercise or whatever woo they happen to personally favour. There's a lesson here somewhere. A duck-shaped duck-sounding lesson. Ah, well.
  6. rvallee

    [Abstract] Impact of [LC] on Physical Activity and Sleep: a Matched Cohort Study using Wearable and EHR data From [All of Us], 2025, Chen et al

    The fact that most LC cases stem from mild acute cases has completely debunked this, and it was always nothing but the product of imagination, a necessary condition for the behavioural model that did not care that the condition was always false. And yet the lie still lives, and all the direct...
  7. rvallee

    Development and implementation of a digital health intervention in routine care for long COVID patients: a comprehensive synopsis, 2025, Goodfellow+

    For research, yes. They are an ideal tool to reach out and streamline data input. Otherwise, no. I haven't seen a single app that couldn't be better replaced with a single page website.
  8. rvallee

    Trial Report Resistance Exercise Therapy for Long COVID: a Randomized, Controlled Trial 2025 Berry et al.

    It doesn't get more pathetic than just trying to make this into something meaningful. Balance bracelets have a more compelling marketing pitch and they're totally worthless. It reminds me of this picture, it's exactly as convincing: "Take those expensive supplements and after several weeks...
  9. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I can respect that. But no one is getting help or the recognition they are PRing for, and a lot of people caught COVID at work where they had no choice either, most of them low-wage workers who will never get any help. And the BMA is not talking about that at all, they seem to have no problem...
  10. rvallee

    Effectiveness and safety of exercise therapy in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A meta-analysis, 2025, Wei+

    And 13 studies isn't even 10% of the studies that have been done this century, and there are at least as many before that. Given their odd promotion of Qigong, obviously they made a selective search with intent to promote Chinese medicine, which is also typical of evidence-based medicine trying...
  11. rvallee

    Tjenesten og MEg | The health service and ME, Sintef FaFo

    And yet it's a simple factual description of where we are. Which is a sign of how catastrophic things are, when the most neutral sober discussion basically amounts to a horror story. Especially as this simple factual description is categorically rejected by everyone in authority, which is also...
  12. rvallee

    Functional Somatic Disorders in Individuals With a History of Sexual Assault 2025 Jacobsen et al

    Uh, this is not how any of this works. Damn are they milking this DanFunD thing, they must be at over 20 papers and absolutely none of it is of any use whatsoever. Ignoring the silliness of single-organ and multi-organ functional whatever, what the hell is incident FSD even supposed to mean? I...
  13. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I don't know if they are aware that no one with LC is getting meaningful help, regardless of whether they work in health care. It doesn't seem so. Because it really throws a wrench in the, frankly appalling, idea of singling out health care workers in some way. There was a very short period of...
  14. rvallee

    Healthcare Situation of 3,345 Long COVID Patients in Germany: Results of a Nationwide Survey, 2025, Gloeckl et al.

    That could have said almost universally. This is basically as poor an evaluation as anything can do, since in most realistic scenarios it's almost impossible to do this poorly when professionals are involved. Professionals learn and adapt, do not continue doing things that don't work. Not here...
  15. rvallee

    Evaluation of Interventions for Cognitive Symptoms in Long COVID, 2025, Knopman et al

    Yup. The goal of those trials isn't to learn anything, it's to keep the fake suspense of "we don't know if this standard thing millions have been subjected to over decades works, just wait until we get more trials, but also it's standard treatment so it's your daddy now and it always works, if...
  16. rvallee

    Protocol Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation PREFACER: a protocol for a randomised feasibility trial, 2025, Billias+

    This is a trial of the idea of conducting a trial. Not a single one of those have anything to do with anything patients need. It's all about checking boxes. Can a trial of exercise be performed? Can the proper boxes be checked? Gee, I don't know. Judging from the LITERALLY HUNDREDS, it's kind...
  17. rvallee

    Protocol Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation PREFACER: a protocol for a randomised feasibility trial, 2025, Billias+

    The bullshit wheel needs to be constantly spun or it stops spinning. It has been determined that the wheel must keep spinning, as otherwise things would be embarrassing, and so the value of this research is to simply keep spinning the wheel. Every old program is old and new again. Always new...
  18. rvallee

    Abnormal breathing patterns and hyperventilation are common in patients with chronic fatigue syndrome during exercise, 2025, Mancini, Natelson et al

    Or normally, I guess, if we go by the data in this study and how hyperventilation is defined. Which looks a lot like 'they're deconditioned but this exercise program didn't help because they were already active enough" to me. Clearly there is something else going on, it's disappointing that...
  19. rvallee

    Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID... , 2025, O'Connor et al.

    Swing and a miss. So close to getting it, yet as far as anyone could ever be. They can listen to thousands of people explaining things to them, and they will still completely miss the meaning of those words. This is an actual talent. A negative one, but still a remarkable talent. Especially...
  20. rvallee

    Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome, 2025, Nezamdoust & Ruel

    This I would dispute, though. The patient group is very reachable. In fact it's literally begging to be reached, this is literally why they are using social media for. It's just that there is zero interest or incentive for professionals to do so. It would take a lot of effort, when health care...
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