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  1. rvallee

    Digital Approaches for Managing Brain Fog in ME/CFS: Interventions, Monitoring, and Future Directions, 2026, Araja

    There is no plausible or rational reason for this, and certainly no basis in fact. Wishful thinking is not a strategy. So as future directions go, how about: no.
  2. rvallee

    Review Systematic review of movement disorders mislabeled as functional: when incongruence misleads 2026 Marín-Medina et al

    So, misdiagnosis is associated with the main, iffy criterion of a problematic diagnosis. Sounds like a problem. Not that this should surprise anyone, but it will likely bother no one involved with the concept, unfortunately.
  3. rvallee

    "The Alienated Patient" - Julian Galt MD

    He could be well-meaning. That rarely means anything here. Someone who wants to teach us about things he barely grasps, not listen to us.
  4. rvallee

    "The Alienated Patient" - Julian Galt MD

    Uh, fairly sure medicine has not "produced" any such thing. What an absolutely bizarre framing. And reading the rest that was quoted here, I mostly see someone who has a very small and narrow perspective on this, and has never been open to hearing from those experiencing it because he doesn't...
  5. rvallee

    ME/CFS Atlas site

    By the way, there are several threads relevant to Norway, if you haven't found them yet. Several things going on right now, with a guidelines project that isn't doing great, a disability law case that rendered a verdict recently involving, somehow, the head of Norwegian medical research, and...
  6. rvallee

    ME/CFS Atlas site

    Hi and welcome. Don't be put off by the criticism, it's what we do here, and it's all meant in a constructive way. Brief and direct aren't meant to be rude, some of us struggle a lot with brain fog and sometimes that gets confused as a bit mean. As you have noticed over the years, the literature...
  7. rvallee

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    "Over-diagnosis / misdiagnosis / acceptance of diagnosis of somatiform/functional disorders is a real problem, and it would appear that there is little appetite by medical professionals to discuss this issue publicly. A major issue is online communities of physicians obsessed with...
  8. rvallee

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Geez, I don't know, if they really are (they're not) seeing 35 patients per day with those "vague symptoms", maybe someone ought to do something about it other than ranting endlessly about how they have to deal with it? Especially since we are also complaining about it but demand solutions...
  9. rvallee

    Norway: 2026 NAV court case over disability benefits

    It's absolutely insane overall, but there is an element of extreme insanity in the insistence of the government that he should try treatments he had already tried, which have no real evidence of efficacy, but then was refused access to those because they are not available. This is legitimately...
  10. rvallee

    Opinion It is not all about strength: rethinking mechanistic assumptions in exercise-based rehabilitation for musculoskeletal pain relief, 2026, Powell et al

    I can't help but think that there is some "folksy" thing going on here, a preference for treating people with gentle hands and advice being seen as superior, more "natural", than with drugs or surgical instruments. All very similar to all other woo ideologies. This undying idea that "natural"...
  11. rvallee

    Review Mechanisms of action of therapeutic exercise for knee and hip OA remain a black box phenomenon: an (IPD) mediation study..., 2023, Runhaar et al

    Some are interpreting it as "yes, the strengthening exercise is not what helps, but it definitely helps, and it must be the experience of being helped", so it remains a huge problem. And somehow generalizing it to all pain, and likely to all symptoms can't be cured or treated pharmaceutically or...
  12. rvallee

    Physical activity for myalgic encephalomyelitis/chronic fatigue syndrome: A clinical practice guideline, 2026, Kirsh et al

    So, some are moving away from GET, and putting everything into CBT under the fear model, while some are moving away from CBT, putting everything into GET. No one can even agree on why they do this, it's all just random and chaotic. Somehow they all pretend that this is fine. But wow are they...
  13. rvallee

    Living evidence syntheses for [LC] therapeutics: combining rigorous protocols to build efficiency while maintaining rigour, 2026, Atkins, Glasziou+

    The what now? There is no such thing, in fact there is yet no evidence of anything, and it's been 6 years. There have been plenty of baseless claims, but that's a different issue entirely, and far more problematic. What planet are these people on? This is a total navel-gazing experiment. They...
  14. rvallee

    Review Mechanisms of action of therapeutic exercise for knee and hip OA remain a black box phenomenon: an (IPD) mediation study..., 2023, Runhaar et al

    Mechanisms of action of therapeutic exercise for knee and hip OA remain a black box phenomenon: an individual patient data mediation study with the OA Trial Bank https://rmdopen.bmj.com/content/9/3/e003220 Abstract Objectives To evaluate mediating factors for the effect of therapeutic...
  15. rvallee

    Opinion It is not all about strength: rethinking mechanistic assumptions in exercise-based rehabilitation for musculoskeletal pain relief, 2026, Powell et al

    The editorial is pay-walled and does not have an abstract, but this Globe & Mail article summarizes its content: The real reason strength training helps reduce pain and rehab injuries. In short: the woo is spreading everywhere, medicine is relying more and more on faith and beliefs to fill in...
  16. rvallee

    Opinion It is not all about strength: rethinking mechanistic assumptions in exercise-based rehabilitation for musculoskeletal pain relief, 2026, Powell et al

    It is not all about strength: rethinking mechanistic assumptions in exercise-based rehabilitation for musculoskeletal pain relief https://bjsm.bmj.com/content/60/6/407.long No abstract. Pay-walled. See below.
  17. rvallee

    School Difficulties and Long COVID in Children and Adolescents, 2026, Reeder, Gross et al.

    Zero chance of this happening, which only increases the urgency of finding treatments, and that's not happening right now. But it seems that when it comes to public health issues like this, 'urgent' is mostly on a historical time frame, and there is basically no concept of ever bothering to...
  18. rvallee

    Review Physiotherapy management of long COVID in adults 2026 Nygren-Bonnier and Holland

    At this point I find it hard to argue that this isn't a big reason why medical research is so slow at delivering better outcomes. Why try to improve when it's literally better for one's career to do bad research? Eliminating dead-ends is one of the most important part of research, and in...
  19. rvallee

    When High Scores Hide Realities: Enhancing Patient Survey Data Through Joint Display, 2026, Brierley

    But then they'd know they're not helping, and they don't want to know that, or change what they are doing. They seem perfectly fine with participation trophies, something I will never understand but clearly they want this more than they want to know the truth.
  20. rvallee

    When High Scores Hide Realities: Enhancing Patient Survey Data Through Joint Display, 2026, Brierley

    If only they understood just how inflated those scores are. We are so used to being treated like crap that the standard "I had the best medical appointment ever!" post on reddit basically amount to: was not insulted or dismissed, no help, though. They have such a low bar to cross simply to get a...
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