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I find that my illness fluctuates over time. The illness severity determines whether events are stressful or managable, activities are exhausting or enjoyable, and how I feel in general, and how well I'm able to organize things in my life. So it's to be expected that generally more positive...

If I remember right atypical ME in the context of the Canadian criteria means no infectious onset.

I think German advocacy succeeded because they were able to reach people in parliament with successful protests, after a very successful petition that had the support from wider society and not just patients and family. A few engaged German doctors is maybe also what made all it possible.

The mechanism behind the belief in psychosomatic illness appears to be that uncontrolled severe illness causes feelings of hopelessness and despair. This makes the belief that there is a very simple thing that can be done to cure or control the illness so attractive. An industry has grown to...

I can experience a drop in mood during PEM. It lasts only a day or two and gets better with rest.

Is it possible to demonstrate causality with these methods? I have doubts. Also the authors make the assumption that the thing that is called "stress" that is being measured is something that is modifiable with CBT. It could also be a sign of a biological process that is not modifiable. Or be...

Does the "more likely to report clinical depression" group differ in other ways? Is this clinical depression being confused with ME/CFS, or is it ME/CFS that is misdiagnosed as depression because the lack of infection makes clinicians think depression instead of ME/CFS, or does this group...

He calls graded exercise therapy "pacing". I also looked at reference 3. The descriptions of a patient sounded more like POTS or a form of OI to me, as typical symptoms of OI like chest pain and cognitive impairment ("empty headedness") are mentioned as arising from short walks.

I suspect the reason that GRADE does not allow for the possibility that a study is so bad as to be useless is that it wants to be attractive to the industry. In practice it's probably possible to sell a treatment even with marginal or dubious benefits, so what the industry needs from a system...

It's impossible to have serious fatigue and not have reduced activity levels. The BPS people are telling nonsense again.

The perpetuating factors of fatigue according to BPS people. It looks like thinly veiled patient blaming. Or at least sets the stage for it. And I doubt that there's any real evidence behind it. It's probably all the usual deliberate confusion of correlation with causation that we've seen so...

I think antioxidants are somewhat helpful for me.

It's a convenient narrative to create or justify inequality in healthcare.

My guess is that higher socioeconomic status affects the ability to obtain a diagnosis, in particular when the problem is not easily diagnosable.

From what I understood he thinks that herpesviruses in bone marrow, and their effect on the cells that develop there, are key.

I can understand how it would be hard to contain excitement if something promising was found, and how people need to believe in the possibility of making a breakthrough to stay motivated.

I know that state of only being able to listen to another person talking to me and responding with yes or no, and not being capable of properly expressing myself or thinking. It's just another manifestation of poor blood flow to the brain.

I didn't experience Schadenfreude but felt like healthy people were getting a glimpse of what it means to be chronically ill. Just a glimpse because they were not having symptoms or being met with disbelief or hostility for staying at home.

Do we know if genome analysis was part of the intramural study?

I can feel clearly when the blood drains away from the head during certain movements. And also how good it feels when certain exercises improve blood flow to the brain. Alternating between sitting and standing is a good way to provoke low blood flow to the brain but not the only problematic...