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Maybe we're looking for something that causes little problems while in a well rested state, but interferes with the body's ability to recover from exertion. Maybe something that's important for tissue repair/maintenance is blocked by these antibodies. While there is only a little bit of wear to...

To be a worthwhile treatment, any positive effect would have to be larger than the negative effect of a visit to the clinic and having a mildly invasive procedure done. In my experience drinking salt water is an effective intervention for the symptoms they intend to treat, but the effect wears...

You're right. On good days I overestimate how much I can do. I already crashed this spring from doing too much. I feel like I have no choice to try anyway... there's some financial support from my family but I can't expect any from the state. I'm not sure that I could be genuinely happy living...

It's sad that someone would waste their time and energy on this. At best they're slowly discovering what patients have been saying all along about the importance of accepting one's limitations and pacing, at worst they're trying to prove the same old prejudices true and spreading misleading...

You could find a very large number of correlations between things in these patients. It's not worth publishing a paper just to say that you've found some correlation and then speculating that one of these things is causing the other and a potential treatment target. Psychological flexibility...

Responding to a member's now deleted post about how they decided to work on a problem, and how that meant that other life decisions flowed from that. It's a good story. Thanks for sharing. I wonder how your story will unfold. I know what you mean. I can only really work on something when...

I think it means: that the signal is weak, and that this could be due to these diagnoses being unspecific or genetic factors playing a marginal role.

They mention that in the validation cohort, the identified SNPs were not statistically significant. It seems contradictory to think of these disorders as having no organic basis and then identifying genetic causative factors. The interpretation of the results seems to be keen on reassuring...

I'm still going to the service for autistic adults but it doesn't offer much besides some social activities and psychotherapy. I feel like I need more concrete guidance that allows me to understand my limitations and strengths, techniques to manage my specific problems (like pacing for PEM, but...

There's his sister which is allegedly a CBT therapist treating CFS. I'm sure that he is not well because people who are well don't behave like this. They are balanced, accepting of reality and don't cling to fringe ideas promising miracles. It's easier to be in denial and use self deceit to...

Yes. It may be particularly prominent in some social circles, with harsh consequences for those failing to live according to these values. Maybe disability and chronic illness is seen as personal failure. The words "the only disability is a bad attitude" come to mind. In other social circles...

Garner may be coming from a social environment where not exhibiting values that he is now advocating for is considered shameful. This could explain why he is so motivated to show that he's not part of the group that deserves to be shamed.

This is what I've been trying to do for the last few years. First, working on my physical strength and endurance. Then dealing with the affective deprivation and working on my social skills. The driver' license. Trying to continuously do new things, visit new places and discover my limits. Now...

I don't know if I should try to find out what I like, get good at it and transform it into a job (most likely a small one). Or if I should aim for few hours per week but relatively high pay and express creativity and find satisfaction in hobbies. I have some financial support, and survival is...

Re. judging the appropriate level of concern/distress. Maybe they know some statistics about this category of patients and therefore know it's probably not life threatening. Even if an illness is not life threatening, the possibility of permanent disability and continued decline are horrifying...

Yes, there are two incredibly obvious alternative explanations for the correlation. The first is that the patients have an illness that affects the body and the brain. The affected brain cannot perform all of its usual function as well, and the result is things like deficits in emotional...

Translating medical reports from one language to another. But it doesn't inspire me... and AI is good at doing this kind of task so the pay has declined a lot over the last few years. I've often thought that when it comes to MUS, doctors need to hear the patient perspective and not just the...

One job that I could probably do with little difficulty would be medical translator.

The desire to cultivate critical thinking here is very valuable and I can say that it really changed me as a person. A few weeks ago I had a conversation with a psychology student who was taught that when many studies find the same result, it means that it has been proven by science. I could...

I liked programming because it rewards being thoughtful and precise and allowed me to build things and be creative.