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Has this email from ME Action gone live as I didn't receive it?

It's like...such a revelation!! Jeez....

Does the increased nerve cell activity cause the excitotoxicity Cheney talks about....my symptoms calm with Klonopin and I can be more functional for a short time...it's like the old me comes back. Also, I wonder if increased nerve cell activity causes the wired feeling at night, the racing...

For the severely ill, pacing seems somewhat of a stretch. I am severe and get pem so easily. I spend alot of my day staring out the window but I have to eat, wash etc...so everyday I have pem inevitably. One thing I do hope is covered in NICE guidelines is that mental activities like reading...

I have zero faith in Koroshetz for some reason, he always seems evasive.

Is it Espe....U.K co-ordinator

I think it's a total waste of time and energy. They have received over 2,000 emails and we saw response. I think we should just leave it for now. Sorry I forget M.E Action's PR person's name but I had hoped that she would be going to radio/newspapers....I know it's shaky ground though. But the...

Well I think saying who gives ME Action the right to represent ME patients for one and the gif screaming Lies is hardly friendly...if we were all singing from the same hymn sheet it would look better but we are not. Right now we urgently need Research dollars, that should be the focus in the...

Oh God one in particular, not content with one tweet, has to be multiple tweets. The person is everywhere I go. It's a wonder he hasn't found his way in here!!!

God Almighty the replies to his tweet...the infighting is so apparent, doesn't look good.

I think so normals as in controls. Maybe he is putting a very positive shine on it all but there is collaboration going on so that can only be a good thing

I listened to this today and MRC was mentioned in reference to collaborating with Ron Tomkins... I don't have a good grasp of all that's going on but I assumed on listening to this MRC were going to collaborate which is good... whether that involves spending much money is another matter I suppose

@Webdog well done!! Your name makes me giggle...great work!!

So @Peter Trewhitt we are not fully out of the woods yet? Any idea when this might be finally sorted and the resubmission removed altogether. That's our ultimate goal, is that correct?

Merged thread https://meaustralia.net/2018/12/05/new-australian-research-network-holding-scientific-workshop-on-me/

Why would evening primrose oil cause problems?

What also irks me, I know a number of people in the community who will never post about M.E on their personal social media pages. They are ashamed or private about it. I know each to their own but hiding won't achieve anything. I don't post much myself but I have become braver.

But how do you know the true figures...sorry I bang on about it but doctors can't even diagnose us in many cases.

There will be no mistakes in Maureen's work, she is as thorough as they come imo. If M.E is a metabolic disease, are there any other metabolic diseases caused by a perturbed immune system whose treatments might benefit us? Again, I hope my question makes sense?@Jonathan Edwards @alex3619 or...

https://meaustralia.net/2018/12/05/meet-the-scientists-prof-sonya-marshall-gradisnik/ May be of interest...