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I think Invest in ME do super work. They should be involved in the formation of any documentation going forward and given ample opportunity to so. If they felt slighted, so be it, we need to let it go and appreciate all they do. They want what is best for patients, that is the main thing. We...

I don't get the idea of M.E being hard to diagnose. I diagnosed myself and got it confirmed by two consultants within 6 months. Of course I had all the standard hospital tests done in the hope that it would be something else but I knew very early on. The crashes are the cardinal sypmtom. PeNE...

https://www.google.ie/url?sa=t&source=web&rct=j&url=https://m.youtube.com/watch%3Fv%3DAw6ESBGDi5c&ved=0ahUKEwjuj6P_s7XbAhVCElAKHQBeAq0QwqsBCCQwAA&usg=AOvVaw1-VQ_8zP_FdkkqPDKGRHuO

I too feel skeptical about the metabolic trap hypotheses. I know Nancy Klimas did not present at the Conference but to me, she is closer than any other researcher to cracking ME/CFS. Her idea of a system reset and her description of pem hit the nail on the head for me. Her pilot trial is due to...

Funny how our 'wild fantasies' change with illness....I share your wild fantasy :hug:

Fingers crossed Mark Davis and Ron Davis get funding

He is contacting his members of Congress, I sent him ME Action standard email to forward....so maybe some good might come out of it....maybe...

@andypants, I went to such effort, handwritten 9 page letter even a phonecall and I hate phone calls...numerous emails over and back explaining.....sigh....I have 3 more people in the States I could contact...distant relatives that I don't know very well...can't wait to start with those!!!

Sorry, maybe I should have kept it to myself!!

I got this crap from a family friend I contacted recently trying to get him to contact his member of Congress to support the recent ME senate resolution in the U.S...I wrote a detailed letter, e-mailed loads of info...IOM, Unrest. I explained the illness over and over.....this is my most recent...

Any increase since Andy? If you have numbers handy...thanks

Great work Robert, thank you

Thanks @Robert 1973 .....we keep chipping at that mountain and we will get through

Likewise @NelliePledge....we all have to do what we can...I am ok financially at least for now as husband working. As I buy no clothes for myself and go nowhere really, my gift to myself is donating when I can.

I know Trish, what I wonder at is if there are so many of us...if each gave a small amount, it wouldn't be long adding up. I just want to win the lotto!!!

I notice the U.K crowdrise is going pretty slow....maybe I'm just impatient but with all the stellar work M.E. Action are doing I'd love to see them getting better financial support...I know people can only give what they can....the global one is slow as well which is disappointing.

Brilliant Andy, that's a super jump!!

@JenB now that picture says it all....fair play to you @ballard. The truth ain't pretty.

How depressing...

Andy, have you the current number of MP signatures for the EDM?