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Trypanosome sounds way out there to me.... autoimmunity seems far more realistic considering that it is not uncommon for 2 family members to have it. Autoimmune disease is rampant on one side of my family. None of them struck gold like me though.

Hopefully someone will apply for the post! We don't seem to be an attractive bunch. Did the UK biobank manage to recruit a nurse does anyone know?

Not anxiety related. They come after any exertion and random bouts at night that wake me. They have gotten worse recently. Has anyone any experience of these and any luck treating them. Thanks...I also have severe OI, arrythmia, erratic heart rate etc.. the whole shooting gallery... Had a...

Fair play to Jennifer...that sums it up really 'a contradictory mess'.... whatever good bits are in at are spoiled by returning to the increase in exercise. We would love to increase our exercise and might do so some day if we are given appropriate medical treatments. I keep trying to convince...

I'm as braindead as they come but I know Gordon Broderick is an excellent scientist and I know my stress response broke when I became ill....the HPA axis dysregulation idea makes sense to me and my experience. I believe my illness resulted from years of ongoing stress until finally a viral...

Well I was glad that names were requested so a meeting may happen...at least we didn't get an outright 'no'. Sleep conference is a joke all right. But I hope Collins might do more if pressure continues...

ME Action are pretty astounding for such a small group of people. Very impressive.

Anyone have any idea what Lipkin's ' bullish views' might be in relation to ME/CFS that Simon refers to for upcoming blog.... I'm intrigued!!

We can only hope that a biomarker will be a game changer....you would hope the younger doctors might be a bit more open minded. I've said it before but hospital terrifies me after my experience when I became ill initially. I have a cardiologist I see now, he is a gentleman but I feel he thinks...

What does she think of updated CDC website for Health Practitioners

I'm looking forward to hearing what ME Action thinks of it

Bang on, agree totally.

No mention of the 25% longterm homebound or bedbound and their inability to interact with the healthcare system. That is very sad, no acknowledgment of the sickest amongst us, just ignored.

How many potential biomarkers have we at this stage. Time for another break from the world of M E happenings :banghead:

I'd really like someone to ask when is Dr.Collins going to meet with ME Action??

This post and several following have been merged since it introduces another article about the same research. https://www.medicalnewstoday.com/articles/322414.php ''We're getting close to the point where we can develop animal models that will allow us to test various hypotheses, as well as...

Nothing to get excited about unfortunately...

Totally agree, 'recovery' immediately detracts from the seriousness of the disease and gives the impression that all will be well in the end so it's no big deal. It's thrown around way too often. I rested from the beginning and I am severe now. Unless stress has driven me to being severe...

Jeez it's slow!!!

Thats one year....Pine won't be coming in again, they are nowhere near 10 million per year really...