Search results

ME does have around 60 symptoms unfortunately....the severe patients can vouch for that. The hope is that what is learned from ME research will benefit fibromyalgia, as they seem similar in some ways. Not sure where Lyme fits in. But right now the focus is M.E and that suits me.

There is no guarantee of success, Ron himself has said multiple times science can and does disappoint. They can only promise hard work which I am so grateful for as a severe patient.

Totally with you Mattie.

Good luck to that...... it's as slow as molasses. Certainly not counting on them for answers.

I expect good researchers need to get a decent wage!. I think we should all chip in if we can...it's a great opportunity to increase Research funding. Especially after the disappointing drop in NIH funding this year.

Is there anything working right in our M.E bodies??

How does the metabolic trap theory explain the improvement seen in patients receiving ampligen/cyclophosphamide? How does immuno suppression or modulation affect the trytophan pathway...since it's locked into an unhealthy state?

Made me giggle...no sugarcoating with our David

@mariovitali I hope you are in contact with Dr. Davis

Is there a general feeling that we are getting closer to answers?

I didn't have a good feeling about him from day 1!!!

Ah jeez...does anything ever go right in the land of M.E!!!?

Yes but I often think if there was no OMF..we would have very little going on. Fingers crossed it won't take too long to come up with some answers...

Have you guys high expectations of the Symposium? I'm not as excited as last year!

Maybe....I know I'm allergic to the term chronic fatigue...and no way wud I ever use it as it's the most feeble description of such a horrible illness.

Well I wish he would call it M.E then and not chronic Fatigue!!

Has he chronic Fatigue or M.E....wish syndrome could at least be added to chronic Fatigue.....as we all know chronic Fatigue is not M.E. I'm not sure about this being a super idea.

Are OMF and their Collaborative Centres planning any brain scans does anyone know?

It's still a case of which comes first, chicken or the egg

I think I read before that members were wary of Don Staine's research at Griffith University. I couldn't find it here...I got the invest in ME Conference DVD, haven't watched his presentation yet. Don't want false hope...is there a reason their research isn't considered strong?