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Ron Davis heading off to Australia, that man is working so hard at his age.

How many years will that take....

Is 9 patients and 9 controls an unusually small study or are studies often this small? Sorry if this is a beyond basic question..

Maybe it's evidence that there aren't millions of people missing....numbers of patients could well be hugely exaggerated...maybe I'm alone in my opinion but I think M.E is far less common than it's made out to be. Like in Ireland, last estimate was 14,000 out of a population of 4.5 million. We...

@Cinders66 I'm not sure what you mean in your reference to severe M.E

@JaimeS are you attending meeting on 7th December?

@Cinders66 you are so hitting the nail on the head. What the hell can we do? I was going to suggest you writing to Francis Collins but what's the use I guess. I've written a few times....to great effect obviously.

I can see nothing positive in this response, it's lame and so frustrating.

https://www.change.org/p/increase-research-funding-for-me-cfs/u/23686254?cs_tk=AUWl2Qz7NG-fLViGA1wAnBKDWTbxtNsAD1IAIo2cXA%3D%3D&utm_campaign=8ea457b4a7164a6ebc71bf0a543a3a4d&utm_medium=email&utm_source=petition_update&utm_term=cs

There seems to be alot of devices in the making.

@alex3619 why do u not see it as a potential diagnostic biomarker?

Thanks Andy, I was looking at a different list...

Sorry but why can't I see Dr.Weir or Dr.Sheperd on the updated committee members list? Am i missing something :confused:

I just mean fy2018 there were very few applications

It's total disregard. It feels like we are powerless against them. They refuse to listen and know they can get away with it.

I don't think they are applying....

Let's see how meeting with M.E Action goes on 7th December....fingers crossed

Oh Wonko, I want to hug you!

Gosh I sense optimism here... I'm not feeling it myself and I agree the template letter may not be the best but we have no other options as I for one, am like a zombie with energy of a dead cat

Appointees will not be changed...so surprising! I sent my email using ME Action tool so assume a generic reply going to all. They can ignore us with no consequences whatsoever. Email below Thank you for your recent email to the National Institute for Health and Care Excellence (NICE), in which...