I found mefenamic acid really helpful for period pain, reducing blood loss and with menstrual migraine. GP prescribed this to me in my 40s.
Tbh, period pain wasn't much of am issue and as I approach menopause other aspects worsened. But if I was much younger I hope I would have been offered...
And GPs are often a lot more helpful with migraine as they can 'do' something useful. And most GP practices have patients on these new treatments doing well so it will probably not be news to them. You do need a history of having 'tried' I.e. been prescribed 3 things that didn't help much that...
...people who either have ones that present in younger females more often but also are diagnosed within that timeframe. MS, stroke/vascular and migraine seem to be predominant. Even then you are looking at people with early onset and early diagnosis to match the age groups, and from what I'm...
Good point. I think they absolutely do try to FND migraines, but usually it’s far down the list and I bet you’re right about why that is!
Ill look into it as soon as I have a little mental energy, see if I can sell it to my GPs although I may have to leave them soon due to their attitudes ME...
Tbh, I doubt neurologists who entertain FND are of the same variety who understand these new migraine treatments and the science behind them. I wonder why migraine never seems to show itself with FND. I suspect, being cynical, that too many neurologists get migraines for that to wash. Weird, eh...
...for me that made the difference because for a moment I used to remember being at work and so many FRidays having to race home with migraine whilst I could still get home. SO it was very much about exhaustion, pushing thorugh, but I think also light (there are indeed certain foodstuffs too)...
Oh wow I am happy for you!!!
Would I need to be under a neurologist to access this because I don’t see this being possible with out acquiring the unwelcome passenger of FND….?
There are now science based monoclonal antibody treatments for migraine.
https://migrainetrust.org/live-with-migraine/healthcare/treatments/calcitonin-gene-related-peptide-monoclonal-antibodies/
They specifically block the process that results in migraine symptoms.
I'm aware of several pwME...
Also it is a complex issue teasing apart migraines as a symptom of ME and migraines co occurring with ME. I get migraines when in PEM and I see them as a symptom of the PEM, their frequency, duration and severity are associated with the current severity of my overall ME. However I also get...
No mention anywhere I can see of PEM. I think if someone has frequent migraines they are likely to be fatigued, suffer brain fog at least during the migraines, unrefreshing sleep and obviously headache. Not difficult to see chronic migraines being misdiagnosed on this definition as CFS.
Free:
https://ruralneuropractice.com/fatigue-chronic-fatigue-syndrome-and-migraine-intersecting-the-lines-through-a-cross-sectional-study-in-patients-with-episodic-and-chronic-migraine/
Fatigue, chronic fatigue syndrome and migraine: Intersecting the lines through a cross-sectional study in...
I found this recent paper useful in understanding these recent medicines for migraine:
Calcitonin Gene-Related Peptide Receptor, 2023, Rashid and Manghi
It's interesting to think how the raised blood CGRP in people prone to migraines might also be related to orthostatic intolerance and PEM...
merged
New drug thought to cut migraine attacks by half could be available within months (msn.com)
eta:another article with more info
'Life-changing' tablet that tackles common illness could be available in UK by Christmas (msn.com)
For me at the moment a good day is a day without a migraine headache, currently that is three days out of five, in a fairly regular 2day/3day cycle.
On the migraine free good days I don't need to close my eyes and pretend to be a jellyfish without a brain every few minutes to prevent pain...
...COVID-19 survivors one year after infection (14.4±6.0 months). Older age, female sex, higher body mass index, and history of migraine, whiplash, stress, type-2 diabetes, neurological disorders, and lower socioeconomic status, were risk factors associated with the development of de novo...
...in Wonderland syndrome (AIWS) is a transient neurological disturbance characterized by sensory distortions most frequently associated with migraine in adults. Some lines of evidence suggest that AIWS and migraine might share common pathophysiological mechanisms, therefore we set out to...
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