Search results for query: migraine

...drugs that haven't even made the list yet), and also age-related stuff like mild arterial disease. I think mine's drug-related, but as stopping the med could result in a flare that'd be a lot more disabling than Reynaud's, it's not worth finding out. Same goes for my friend and her migraine meds.

Thanks for the suggestion. I suspect that my changes are not part of a gradual change in my migraines as they are so tightly tied to the gepants. On some days on rimegepant, I had a moderate migraine followed by full post-drome/PEM that was much worse than the migraine. This had never happened...

I'd recommend having a read up on chronic or "transformed" migraine - it's more nuanced than just "lots of episodic migraine". Possibly related to that are just the changes in presentation that can occur as episodic migraineurs age. I had strictly episodic & uncomplicated migraine for about 15...

Thanks, @Ryan31337 and @Nightsong for your insights. I've had migraine for seven years without reading too much about others' symptoms and hadn't realised how close to PEM a postdrome could be (or at least the description of it). But I noticed that for you and @MrMagoo your PEM is different...

Other way round for me - migraines are triggered by PEM. My migraines respond well to triptans fortunately. If I’ve run out of triptans and have a bad migraine then yes the migraine can trigger/deepen the PEM, especially when my ME is in a v severe phase (I’m currently moderate/severe but it...

First migraine aged 4 or 5. My PEM is flu-like symptoms, my postdrome is more like a hangover after a very good night out. I often forget what it is, and say I have a hangover even though I haven’t had alcohol in years.

That's about right for me too - no swollen glands or feeling "poorly" with a migraine. Sleepiness (different from fatigue) is more present with the migraine but not in PEM too. One crossover I do get though is they both tend to worsen autonomic function, i'll find being upright a lot less...

Thanks for posting your experience. For me it's been the other way around; I've suffered with migraines since early childhood. After a particularly severe migraine I do experience what's referred to in the literature as the "postdrome", but for me it's very different from PEM. Migraine...

Hi Pi, I'm glad you've had some success in treating your migraine :) What you describe is reported quite commonly by migraineurs, including the uncomplicated patients that don't have ME/CFS. There may be some crossover but its probably not PEM as we understand it in ME/CFS. There's increasing...

(It continues to astonish me just how large a body of literature will have to be ejected to make any progress. Coming from a highly technical area of medicine with a literature base that is often very complex (physics, maths and now machine learning), I just can't even with this stuff.) They...

Hi I've had ME for decades, but my migraines only started 7 years ago. The migraines are very disabling and usually last for almost a whole a day. I'd always suspected that migraines interacted with my ME, and both migraine and ME consultants thought this was likely. Recent experience with a...

That's interesting. I would propose to set up a democratic process of some kind to create a shortlist of potential medications which could then be voted on by the community. A bit like what was set up by @Snow Leopard with outcomes here...

...There was discussion on the Rob Wust paper thread about the possibility of acetylcholinesterase receptors being involved. Triptans for migraine cause cerebral vasoconstriction but the gepant group doesn't. Would patients with both ME and migraine get better function on g epants, not just...

...allowed Tel Aviv University scientists to identify signs of COVID, flu and strep throat before patients' symptoms started. The next targets: migraines and high blood sugar If your smartwatch warned you before symptoms appeared that you might have caught COVID, flu or strep throat, would you...

...makes everything worse particularly regarding that. Just like someone might get diahorrea and more sensitive to touch etc if they had a migraine and had to sit in a strobe lighted rock concert for 4 days. I just don't think that the system is capable of the nuances you are trying to describe...

Yes. I was worried but I'd have been a lot more worried if I hadn't had migraines with aura before.

@RedFox I'm curious if you experienced migraines before this incidence? I had a friend who went to the ER in her late 50's from the same symptoms and the neurologists told her that it's not normal to have a migraine at that age if you've never experienced one before. They did an MRI and...

One time I was having either a migraine or a stroke. Not only was I getting the characteristic visual aura, I was having trouble speaking and my right hand was tingling. Because three separate nerves supply the hand, but most of it felt funny, I knew it was central, not peripheral. Instead of...

...and Kangol aren’t far off but don’t go right through my eyes and body as quickly. anyway once I’m there then it’s basically like having a migraine except my body is also crumbling with exhaustion even just from eg birdsong now I sort of don’t know how I survived the continued onslaught I...

...but demand structured data. Meanwhile, a wealth of information lies untapped in online forums. For instance, thousands with diabetes, migraines, or Long Covid share their treatment experiences on dedicated subreddits. This data is rich, diverse, and accessible – but unstructured. In this...