And yet, they have caused harm. Not least by diverting funds and effort away from collecting useful information. But also in diminishing people's trust in the medical system, particularly in diminishing young people's trust in the medical system. Probably also in some cases in solidifying...
Just glancing through some of the treatment section
Symptom management
Sleep hygiene and CBT for sleep - no evidence and can be harmful for pwME
Cognitive rehab - no evidence
OI is confused with POTS. I'm no expert, but surely a blanket recommendation of increased salt for OI could be harmful...
@Oni, this post from @obeat on another thread may be helpful for you.
It seems very sensible to have a list of your specific needs in such brief and clear form to take with you to discuss with the staff...
...implausible that CGRP might play a role but a variety of medications targeting CGRP have been introduced in the last few years for migraine, including monoclonal antibodies like erenumab, and a group of small-molecule CGRP antagonists mainly given as migraine abortives (the -gepants) and if...
I may need surgery in the semi-near future, would you mind if i copied your post to a word doc to use as a template for myself?
Sorry you had such a crap time & well done for sorting this out for yourself it seems really good
Thanks so much for sharing all this information and detail @obeat!
I feel inspired to try and write something for myself incase I have to stay at hospital as this is something everyone dreads maybe this would make a bad situation a little less stressful.
...Beta blockers cause prolonged drop in blood pressure,heart rate and cognitive function.
Need anti nausea drugs.
Fasting can trigger a migraine. It took 10 months to recover from previous surgery.
11. Facilitate a rapid discharge as soon as the doctor says I am medically fit to leave to...
...(I think noise is as bad as anything else because it can be continuous without break) you need to rest to get good rest and it's more like a migraine combined with vertigo but also like the body has been exerted and needs to wind itself down except ours takes x times longer than most (again...
Evidence-based medicine in a nutshell: health care professionals want this to be true, but patients report that it's not, so they recommend it.
Why bother with reality when you can just make stuff and never look back?
Dear Colleagues,
Migraine presents significant public health burden. This condition presents central nervous system (CNS) disorder affecting nerves and blood vessels. Previously it was stated that migraine presents risk factor for cardiovascular diseases. Persons with migraine can have multiple...
...My friend's treatment wasn't enormously expensive, but he did have to pay for it. It was worth it to him because it seemed to offer a genuine chance of reducing migraine frequency—if yours isn't causing quite such painful and disruptive consequences, the cost/benefit calculation might be...
...anything and everything stage, so later trying this again I found when I broke my diet with a sandwich my ME symptoms got worse along with a migraine twenty four hours later. Looking at gluten more systematically I identified my intolerance, but the clear pattern of the delay was only...
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