Search results for query: migraine

  1. Hutan

    Protocol Serial Paediatrics Omics Tracking in [ME] (SPOT-ME): protocol paper for a multidisciplinary, observational study..., 2024, Armstrong+

    And yet, they have caused harm. Not least by diverting funds and effort away from collecting useful information. But also in diminishing people's trust in the medical system, particularly in diminishing young people's trust in the medical system. Probably also in some cases in solidifying...
  2. Trish

    NHS England - E-learning Modules on ME/CFS

    Just glancing through some of the treatment section Symptom management Sleep hygiene and CBT for sleep - no evidence and can be harmful for pwME Cognitive rehab - no evidence OI is confused with POTS. I'm no expert, but surely a blanket recommendation of increased salt for OI could be harmful...
  3. Trish

    Severe ME and surgery

    @Oni, this post from @obeat on another thread may be helpful for you. It seems very sensible to have a list of your specific needs in such brief and clear form to take with you to discuss with the staff...
  4. Nightsong

    Hypothesis Calcitonin gene-related peptide-induced central sensitization: A hypothesis for long COVID symptoms, 2025, Ella J. Lee et al

    ...implausible that CGRP might play a role but a variety of medications targeting CGRP have been introduced in the last few years for migraine, including monoclonal antibodies like erenumab, and a group of small-molecule CGRP antagonists mainly given as migraine abortives (the -gepants) and if...
  5. JemPD

    A new support pack for anyone with ME/CFS going to hospital (MEA)

    I may need surgery in the semi-near future, would you mind if i copied your post to a word doc to use as a template for myself? Sorry you had such a crap time & well done for sorting this out for yourself it seems really good
  6. Ash

    A new support pack for anyone with ME/CFS going to hospital (MEA)

    Thanks so much for sharing all this information and detail @obeat! I feel inspired to try and write something for myself incase I have to stay at hospital as this is something everyone dreads maybe this would make a bad situation a little less stressful.
  7. obeat

    A new support pack for anyone with ME/CFS going to hospital (MEA)

    ...Beta blockers cause prolonged drop in blood pressure,heart rate and cognitive function. Need anti nausea drugs. Fasting can trigger a migraine. It took 10 months to recover from previous surgery. 11. Facilitate a rapid discharge as soon as the doctor says I am medically fit to leave to...
  8. B

    What high-quality resources should S4ME produce for PwME, clinicians, researchers etc.?

    ...(I think noise is as bad as anything else because it can be continuous without break) you need to rest to get good rest and it's more like a migraine combined with vertigo but also like the body has been exerted and needs to wind itself down except ours takes x times longer than most (again...
  9. rvallee

    MDPI Medicina, Special Issue: Impact of Exercise and Physical Therapy on Quality of Life in People with Migraine

    Evidence-based medicine in a nutshell: health care professionals want this to be true, but patients report that it's not, so they recommend it. Why bother with reality when you can just make stuff and never look back?
  10. Yann04

    MDPI Medicina, Special Issue: Impact of Exercise and Physical Therapy on Quality of Life in People with Migraine

    Dear Colleagues, Migraine presents significant public health burden. This condition presents central nervous system (CNS) disorder affecting nerves and blood vessels. Previously it was stated that migraine presents risk factor for cardiovascular diseases. Persons with migraine can have multiple...
  11. Dolphin

    Thesis Disenfranchising Talk and Communication Work of People with Chronic Overlapping Pain Conditions, 2024, Quaack

    ...(ME/CFS) 45 6.7% Fibromyalgia 61 9.1% Chronic Tension Type Headache 67 10.0% Interstitial Cystitis/Painful Bladder Syndrome 14 2.1% Chronic Migraine 91 13.6% Vulvodynia 14 2.1% Note. Percentage totals exceed 100% because participants were given the option to select multiple chronic...
  12. Kitty

    Is there a treatment for bruxism (teeth grinding)?

    ...My friend's treatment wasn't enormously expensive, but he did have to pay for it. It was worth it to him because it seemed to offer a genuine chance of reducing migraine frequency—if yours isn't causing quite such painful and disruptive consequences, the cost/benefit calculation might be...
  13. Peter T

    PEM discussion thread - post-exertional malaise

    ...anything and everything stage, so later trying this again I found when I broke my diet with a sandwich my ME symptoms got worse along with a migraine twenty four hours later. Looking at gluten more systematically I identified my intolerance, but the clear pattern of the delay was only...
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