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The challenges from diagnosis to treatment mean that ME/CFS can have a dramatic impact on patients’ lives. Representatives from the British Association of Clinicians in ME/CFS (BACME) provide further insights...
...numerous symptoms. Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD, and more.
His published studies include
«Imaging findings of pelvic venous insufficiency in patients with...
April 11, '25: "Orthostatic Flow Syndromes"
Clinician's Roundtable zoom by Interventional Radiologist Steve Smith, MD. Relevant for POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD, and more.
Register:
LINK
...types of) lights that are too much
I don’t know which of the above fall into or are anything to do with light sensitivity. When I get a migraine I have full on putting the nearest towel or dark jumper over my head for extra dark sensitivity, so I assumed it’s ‘that’
I also have days where...
Visual Snow is thought to be neruological. It has only gotten some attention recently because it was long thought to be a part of migraine auras.
I believe some studies have found increased activity in the visual processing areas of the brain. I don’t know what it means or if it’s significant...
...gender were prognostic risk factors for LC (OR 1.06 for age, OR 1.4 for female gender; p value < 0.0001). Background psychiatric diagnoses, migraine, backache and irritable bowel syndrome were predisposing conditions for LC (OR 2.7, p value < .0001). Higher BMI was associated with a greater...
I signed up for the biomarker study. It looks like they have options for drug trials for POTS, migraine, and MCAS, but not ME/CFS as far as I can tell.
...but just for us to remember that the things that help understanding might well be the hallmark examples people can connect to. Like that migraine every Friday or pushing through and it being hard then suddenly bursting with sleeping three days in a row after x amount of time, being desperate...
...were female; mean age of symptom onset was 44 years (± 12). In the acute onset group, COVID-19 (n = 18, 40%), head injury (n = 16, 36%) and migraine (n = 16, 36%) were the most common precipitating factors for symptom onset, followed by cardiovascular/vasovagal events, dissociative episodes...
...Long COVID symptomologies, save for the significant association between pre-existing cough/dyspnea/pulmonary conditions and pre-existing migraine/headache, and their analogous Long COVID symptoms. The odds of having Long COVID increased comparatively in subjects hospitalized with COVID-19...
Before I had eliminated gluten from my diet its effects largely produced the same symptoms as my ME (headache/migraine, brain fog, IBS type symptoms, fatigue, etc), also they kicked in after an almost exact 24 hour delay. So yes they had significant parallels with PEM. Indeed it was only...
...endothelium, which you would expect given its spike affinity for ACEII receptors, which matches observations of my battles with post covid migraine related to vasoconstriction.
Though interestingly a suspected recurring RSV infection seems to be out reproducing whatever elements of...
...in sweaters I can be semi naked with a fan on. The symptom exacerbation continues over the next day, next day I usually wake up with a migraine etc. This wired feeling and symptom exacerbation can last anywhere from hours to months, and one key feature is I get less sleep than usual.
But...
Agreed. I really don’t see myself in any of those “official descriptions”. It always sucks to read, because it feels like my suffering is never acknowledged, only that of those less severe than me.
As if we don’t have “evidence” of that suffering. We do have evidence of it. But it hasn’t been...
...in the recent years
ME isn’t an illness of mild-moderate people being a bit slow and getting some payback from the odd big day + the odd migraine type issue from some noise . ‘Oh and some are really ill and in a dark room and have feeding issues but we can’t confirm why’
but I don’t think...
Update, I managed to get away from migraine bouts by a regime of linseed oil, turmeric and lysine supplements.
So naturally Murphy's lawyers made sure I caught another virus which causes worse brain fog, asthma, sneezing, runny nose, constipation and heart arrhythmia as well as weaker than...
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