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  1. Mij

    Language Matters: What Not to Say to Patients with Long COVID, ME/CFS, and Other Complex Chronic Disorders, 2025, Nancy J. Smyth et al

    They should be offering realistic hope and emotional support. My ME doctor told me 30 years ago to try to take it day by day and get adequate rest between activities. Obviously it wasn't what I wanted to hear back then but now I understand what me meant.
  2. Mij

    News from The Netherlands

    What about people who can't leave their homes and continue to cancel appointments and listed as "missed appointment" on their file without any explanation.
  3. Mij

    News from the USA, United States of America

    Vitamin A? Cod liver oil? Experts say there is not replacement for measles vaccination There are some uses for vitamin A in measles treatment. But it won't prevent the illness, doctors say. “The thing that I worry about is by (Kennedy) playing this up and others playing this up, it sends a...
  4. Mij

    Renegade Research

    Have you registered? Join us tomorrow at our Clinician's Roundtable where our Medical Director John Haughton, MD at @doc4care will share how clinicians can guide patients through the @RemissionBiome protocol for ME/CFS and Long Covid. Invite your provider! Registration link below LINK
  5. Mij

    Addressing Dysautonomia: A Clinical Approach using Peptide Therapy, 2023, Kale Patel

    I skimmed through the paper but I don't see any mention of GET and CBT. Can you point it out?
  6. Mij

    Epstein-Barr virus infection promotes T cell dysregulation in a humanized mouse model of MS, 2025, Jessica R. Allanach et al

    Abstract Latent infection with Epstein-Barr virus (EBV) is a strong risk factor for the development of multiple sclerosis (MS), although the underlying mechanisms remain unclear. To investigate this association, we induced experimental autoimmune encephalomyelitis (EAE) in immunodeficient mice...
  7. Mij

    Addressing Dysautonomia: A Clinical Approach using Peptide Therapy, 2023, Kale Patel

    Abstract Autonomic dysfunction presents with a wide variety of disabling symptoms. Recently, the emergence of long-COVID has caused an exponential increase in patients with dysautonomia. In patients whose autonomic dysfunction was perpetuated by a stroke, researchers discovered the...
  8. Mij

    News from the USA, United States of America

    In an op-ed published by Fox News Sunday, Kennedy touted the recent update to CDC guidance on “therapeutic medications.” It is also our responsibility to provide up-to-date guidance on available therapeutic medications. While there is no approved antiviral for those who may be infected, CDC has...
  9. Mij

    Precipitating Factors for Functional Cognitive Disorder 2025 Cabreira, McWhirter, Stone and Carson

    The author Alan Carson a big fanboy of PG. The guy who blocked me on X when I suggested he keep an open mind.
  10. Mij

    News from The Netherlands

    Almost 500,000 Long Covid suffers is "tip of the iceberg" Some 450,000 people have been diagnosed with long Covid since the virus first appeared in the Netherlands, 12,000 of whom are unable to work full-time, according to new figures. The number of patients entitled to an incapacity benefit...
  11. Mij

    News from the Middle East and North Africa (the MENA countries) and Turkey

    Prevalence and Characteristics of Long Covid among COVID-19 Survivors in Saudi Arabia: A Cross-Sectional Study
  12. Mij

    News from Canada

    Doctors worry patients with long COVID may be overlooked as crisis fades Prior to the pandemic, Dr. Satish Raj, a Calgary-based cardiologist, was already treating patients with similar problems after viral infections. The condition is known as POTS. "What was different about COVID wasn't that...
  13. Mij

    WHO - trans fats

    Health Canada has banned artificial trans fat, making it illegal for manufacturers to add partially hydrogenated oils to foods sold in Canada. This ban is being phased in and as of September 2020 all artificially produced trans fat will be removed from the food supply. LINK I was under the...
  14. Mij

    Increased hunger during PEM crash

    @forestglip A good alternative is popping your own popcorn. It doesn't take too much energy to make. It also contains tryptophan and sometimes I fall asleep with my hand still in the bowl. I add sea salt and nutritional yeast. Nutritional yeast tastes salty and has a cheese flavour so it...
  15. Mij

    News from the USA, United States of America

    PubMed has been down since yesterday. It's the largest database of biomedical literature in the world with 37M citations. If this is a result of Trump's NIH funding freeze, it's extremely bad news for scientific community not just in the US but across the world.
  16. Mij

    News from the USA, United States of America

    Why is PubMed down? It's run by the NIH and the main way to search for academic papers. What is going on?
  17. Mij

    Managing “Outrage”

    I did for a few years after onset because I wanted family/friends to understand and then stopped after realizing no one was interested. The funny thing is that complete strangers were more interested about my well being :emoji_thinking:
  18. Mij

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Who invited him to speak on the US networks when he was having meltdowns with Covid? I'm thinking he invited himself. Nothing of sort post-Covid recovery tells me he's being ghosted now.
  19. Mij

    Tragus Nerve Stimulation Attenuates Postural Orthostatic Tachycardia Syndrome in Post COVID-19 Infection, 2025, Zhuo Wang et al

    ABSTRACT Background Postural orthostatic tachycardia syndrome (POTS) is characterized by symptoms of orthostatic intolerance and is frequently observed in post-COVID conditions. Objectives We conducted controlled, prospective, and randomized clinical trials to explore the potential therapeutic...
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