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Didn't see any mention of ME/CFS in there.

Shouldn't take long.

I am encouraged by the amount of overt push back by both patients and clinicians/researchers that seems to be happening against FND. The Goldilocks theory of therapeutic failure. Finding the 'right balance', which can only be done with the careful guiding therapeutic hand of a experienced and...

I look forward to having ME without actually having ME. :whistle: And always has been. They have never let go of this idea, even though more than a century later they have failed to get it on a solid footing that allows accurate diagnosis and safe effective treatments. It still revolves around...

I agree that there is a real opportunity here for medical science to learn from differences between those who fully recover from Covid and those who don't. Whether they are up to learning those lessons in a good way is a different story, and sadly one with less hope if recent history is...

I don't think that we are 'entitled' to. But do think that trying to enforce the requirement of justified belief too vigorously has very serious technical problems and socio-political dangers.

Acceptance and commitment therapy for Muscle Disease: a randomised controlled trial Trudie Chalder, King's College London, UK Yeah, sure it is.

PACE did use objective (or relatively objective) outcome measures, like the step test, 6 minute walk test, and employment and welfare use. Problem is they did not use them as primary outcome measures, the results were negative, and they have done everything they can to bury those results...

Yep. Where is the body of robust trials testing these contributing factors?

It is almost axiomatic that every accusation from them against their critics is actually a confession of their own failings. I can't remember the exact numbers, but the proportion of patient reps on the NICE guideline committee was way below what was required to over rule the non-patient reps.

That is my view. We are at the end of the beginning of the Covid-19 story. The main act is only just starting, and it is going to be a long one.

This is the sense in which I use that word when I say that ME can be a distressing disease.

That BPS brain worm sure is a persistent little bugger. *sigh*

Robust methodology would be a good place to start. Insisting on falsifiability in models and trials, for example. Just saying. The BPSM has been biomedicalized We have a long way to go. :facepalm::banghead::ill::grumpy:

Scientists need to start blowing the whistle a lot more on this problem.

Yes, there is a reason we used to do convalescence. And it had nothing to do with malingering or being psycho-pathologically sensitive to one's bodily sensations.

The more I see of celebrity anything, in any context, the more I think we should stay away from it. Seems too often a problematic and costly way to do things, including to the celebrities themselves. Particularly in a highly contentious and charged debate, on the most serious of matters.

That works. As somebody else said, the more we do do, the sicker we get.

Up-pacing :banghead:

:grumpy: