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I enjoy being in water, floating, cool or warm if I try swimming it is less successful than walking despite the float effect helping take my weight. in fact I have had cramp in my calf on more than one occasion when having a little swim, which I don’t get from walking

I’ve got vertical ridges but I’m late 50s and i assume it’s because Im getting older

Not the first time the terminology is twisted to have surreptitious psychosomatic interpretation

There’s constructive engagement and then there’s having a meeting for the sake of appearances let’s hope these researchers are just slow on further communicating and not stonewalling.

Pathetic

Maybe check out the FAQs on the DecodeME website

Just to say if anyone doesn’t normally do social media there are many positive comments in response to George Monbiot’s posts. but also as ever the usual mix of people who are advocating various “approaches” to ME including Lightning Process GET and so on. And the cynics and nasty people as...

Is there a link for the paper @John Mac Based on the extract It’s positive that most of these 11 teachers were able to recognise the impact of ME on their pupils. Concluding that Clinical services should consider collaborating with teachers is hardly cutting edge thinking.

This looks like a positive development. Hopefully similar local GP groups across the U.K. will also engage with the CMRC medical education group.

But in reality any conclusions we’d be attempting to draw are speculative and I’m sceptical that there’s any benefit from discussion of other people’s symptoms based on articles.

https://www.webmd.com/schizophrenia/side-effects-aripiprazole#3-7 insomnia is a very common side effect We would only be speculating on whether that is the case for Whitney.

No

Professor Christopher Norton, York Uni History of Art https://www.york.ac.uk/history-of-art/staff/norton/

https://www.me-international.org/international-meicc-orgs.html

That description of pacing is pacing up not pacing yourself

It’s useful to know that a symptom is not a one off so it’s a step up from an individual account. Obviously large scale surveys such as Action for ME/ME Association in the U.K. with thousands of participants have more use as evidence of issues being widespread.

Looks like the total respondents = 41

I know some people have these tremors regularly. I have only had them a handful of times. I had a realisation that I was visiting friends in Provence my neuropathic pain was aggravated by heat so I took pregabalin for a couple of weeks which I don’t normally take. I checked the side effects...

I would cope very well with hibernation.

Yes a lot to be said for trying to tailor your message to the audience @Colin