Search results

#MEAction's monthly "Facets of ME" post for June: Facets of ME: Temperature Dysregulation https://www.meaction.net/2022/06/23/facetsofme-temp-dysregulation/

I agree! When folks have told me that acceptance must mean I have given up, I generally say that acceptance is about the present moment. No one can predict the future. Therefore, no one can accept the future. One could accept a diagnosis that includes the likelihood of not getting better, but...

[ EDIT: I wrote my comment thinking this thread was about acceptance as a general idea. I didn't realize the context was Acceptance and Commitment Therapy (ACT), something I had never heard of. Sorry for any confusion! ] Another good thing about acceptance is it might lead to the use of...

@perchance dreamer - thanks for posting the details of your experience with cryotherapy. Can you share what country this was in?

Yes, that could be possible. I do feel better in the cold, just posted about it on another thread. By the way, I hope my earlier post didn't look like I was laughing *at* you! :eek::bag: I thought you were making a joke about how cold it got Canada so I posted a laughing emoji. Anyway, so...

I'm not opposed to doing research on this, and I know the exposure time is very short, but I wonder what the risks are? Found this short article on whole body cryotherapy (WBC) on the FDA website...

:laugh: I looked up the coldest temperature ever recorded on earth: − 93.2 °C. That's still warmer than the temperatures used in this study.

Same. Cold always helps me a lot. I always thought it might be due to low blood volume and that extra vasoconstriction pushing more blood to the core (heart/lungs) - maybe also the brain? But that's a complete guess.

Adding to this thread to cross reference information about Bateman Horne Center (BHC) research that has been posted in other threads. The BHC website currently lists three items on their active recruiting page: * Endothelial Function and Upright Activity in ME/CFS and Long COVID [forum thread...

People don't choose illness or injury, but they can choose the language used to describe their situation. There are some people with various impairments or illnesses who don't want to be called disabled. They prefer other labels (Handi-Capable, disAbled, differently-abled, special needs...

Can you explain your point further? I don't understand and I'm sure I'm missing something important. Thanks!

Article posted today by #MEAction: U.S. Healthcare Coding Revisions Enable Tracking of ME/CFS Cases https://www.meaction.net/2022/06/13/u-s-healthcare-coding-revisions-enable-tracking-of-me-cfs-cases

Over the past week or so #MEAction has released several short video clips (2 - 5 minutes long) from their longer Millions Missing presentation. These are available on their YouTube channel - https://www.youtube.com/c/MEActionNet/videos. All videos have subtitles and sign language translation...

I know that Washington Post gift links have not worked in the past for some folks on here, but here's a gift link (no paywall for 14 days) for those who can access it this way - https://wapo.st/3zlU1xN

Beloved Principal Who Fought DeSantis Over In-Person Learning Dies of Long COVID https://news.yahoo.com/beloved-principal-fought-desantis-over-215024685.html Edit - found a slightly longer article about Jim Jackson which uses the term "long-term COVID" so I'm not sure now what his diagnosis...

I just saw this article on Medscape: Nasal Spray for Converting Paroxysmal SVT Seems Feasible, Safe for Long-term Use https://www.medscape.com/viewarticle/973808 I thought I'd post it on this SVT thread for anyone here who might be interested. (mainly me - this way I can easily find it again!)

Moved from the News from NIH thread (my bolding) That sentence that I marked in bold immediately stood out. But then I thought, maybe it could be interpreted in multiple ways? The more generous interpretation is that researchers did believe that ME/CFS patients had biological problems. They...

I thought I'd add that this all started from responses to a twitter poll that I posted. Twitter polls are not meant to be scientific, of course. I saw the poll as a way to get a conversation started about the interaction between Long Covid and ME/CFS. I wanted to talk about whether Long Covid...

Thanks for your reply, @josepdelafuente I also got a response from someone else on twitter. Not posting details since it was in a DM (direct message) but here's the summary. They got their long covid diagnosis from a long covid clinic. The diagnostic code given to them was U09.9 (Post...

A couple ME/CFS patients on twitter have mentioned "getting long Covid" after being infected with SARS‑CoV‑2. Does anyone have a longer explanation for what it might mean to "get Long Covid" if you're already an ME/CFS patient? Long Covid is a pretty big umbrella term. Does it mean these...