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  1. NelliePledge

    Unpleasant taste

    Cigarette smoke, I had no windows open and no neighbours around having a cig in the garden also toast
  2. NelliePledge

    Magnesium

    I find Epsom salt baths relaxing on muscles no negative effects. I haven’t managed baths for quite a few weeks tho just shower. The warm water shower makes muscles feel less achy but I reckon the soaking in salts in the bath makes more of a difference. I also take magnesium supplements and it...
  3. NelliePledge

    Circadian rhythm disruption in [ME/CFS]: Implications for the post-acute sequelae of COVID-19, 2022, McCarthy

    Interesting this is being looked at. one of the worst aspects of PEM for me is the impact on sleep, both lack of and delay.
  4. NelliePledge

    (2022) "Weʼre raising £16,000 to Continue Dr Geraghty's Vital ME/CFS Research"

    Anyone know if there’s a deadline on this as there is for D Tuller?
  5. NelliePledge

    Using PCs versus laptops when you're mostly in or on your bed

    I used to mainly use iPad mini (8 inch) but now I have a more recent 10 inch iPad & although it’s a bit heavier I do appreciate the larger display
  6. NelliePledge

    BPS attempts at psychologizing Long Covid

    The financial and career benefits of a formulaic approach you can pump out eta with minimal effort, so all your time is available for marketing
  7. NelliePledge

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I think it’s best to give a short one one or two sentence explanation what’s in the links to try to encourage people to click through.
  8. NelliePledge

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Format rather than content suggestion here, unsolicited so please feel free to ignore my strong recommendation would be for a short summary with a couple of key links. Intro video by dialogues and one document, preferably a succinct one. Busy people could well be put off by a long list of...
  9. NelliePledge

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    They also ask people if they would be prepared to do a follow up discussion. Will be interesting to see given my responses whether they take me up. “Interesting” that the only questions they ask about what your experience over the last 2 weeks has been are about mental health, the usual stuff...
  10. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Maybe worth approaching APPG to see if there are parliamentarians willing to work with you on raising this with charity commission or Cochrane.
  11. NelliePledge

    Long Covid in the media and social media 2022

    There was also that excellent brief debate in the Lords not so long ago when the group of Baronesses shredded the newly appointed health spokesman. If anyone is going to contact her it would be worth mentioning Baroness Finlay, Baroness Thornton and the others who spoke as good contacts.
  12. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    You may care to say that, I couldn’t possibly comment. (Cultural reference Frances Urqhart original uk series of House of Cards)
  13. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Clearly they are as effective at communication as they are at doing reviews :whistle:
  14. NelliePledge

    Joint patient and clinician priority setting to identify 10 key research questions regarding the long-term sequelae of COVID-19, 2022, Evans, Chalder

    Absolutely this - wangled her way in just to be sure there’s something to justify maintenance of psychosomatic research gravy train for the future. ££££££££££££. sadly many in the Long Covid sphere may not be aware at all or sufficiently of the MUS psychosomatisation context to be able to see...
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