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  1. JemPD

    Number of musculoskeletal pain sites leads to increased long-term healthcare contacts and healthcare related costs, 2021, Mose et al

    I dont know why, because it's just more of the same. But i'm as always incredulous that this is actual research! Well no sh*t Sherlock! Money has been spent to 'discover' that people who have pain seek more healthcare than those who dont. And those who have a lot of pain, in several sites...
  2. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Indeed. I often think when they are pontificating on this or that theory... 'yeah tell that to the late Sophia Mirza, or her mother', i'm sure they would find it very interesting
  3. JemPD

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    :rofl: OH @dave30th you do make me laugh, you really do have such a wonderful turn of phrase, on top of that incisive mind :) Appreciative of you work, as ever.
  4. JemPD

    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    Well i should say she said she understood. i dont yet know her well enough to know if that was really genuine or not. @Ariel :hug:
  5. JemPD

    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    I am mainly housebound anyway but i have been out several times for various medical/dental appointments & necessary shopping. on a few occasions to a local lakeside just for change scenery/fresh air. In roughly July i stopped wearing mask outside & asking people with me to. We keep distance & i...
  6. JemPD

    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    Oh, i cannot offer to tell you how encouraged i am by your post Jonathan. You've been pretty much spot on since it first appeared in China way back in early 2020, so your hopefulness gives me such hope! Even if it takes longer than that, an end to the level of fear and measures -...
  7. JemPD

    Lumpers Versus Splitters: Analysing the Effects of Soothers on Fibromyalgia and Chronic Fatigue Syndrome, 2021, Crowe (M.Sc. Thesis)

    I havent read further than the OP & the list. What i can say is that if i were able to access even say 75% of the things on that list, instead of just 7/40... my life would be transformed! They have no clue.
  8. JemPD

    Why do BPS proponents keep ignoring the evidence against their ideas?

    Yes, i hadnt really thought of it like that before but that describes the situation perfectly. Personally i think this most accurately describes the attitude & motive of the BPS gang, that is, for me, what fits best with what i witness.
  9. JemPD

    United Kingdom: Optimum Health Clinic (Alex Howard)

    Eww. Just Eww. What a slime ball.
  10. JemPD

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    Well i for one just breathed a huge sigh of relief. I dont care who it is, if it's someone connected to us/from S4 they will understand the issues properly, even if they arent listened to, at least we know someone will be there representing us. whomever it is who is volunteering to go -...
  11. JemPD

    Myths and Truths about Placebo Effect in Rehabilitation for Musculoskeletal Pain, 2021, Iolascon and Moretti

    :laugh: haha i have giggling for about 20 minutes at that rvallee "sophisticated instruments" Ooooo I'm so impressed! :rofl::rofl:
  12. JemPD

    GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

    IT's my understanding that Coercive control may, or may not include gaslighting. Coercive control - Womens Aid I would agree that the aspect of CBT for ME that seeks to make the patient doubt their own experience, to believe that the sensations they are experiencing as sensations of illness...
  13. JemPD

    GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

    I first heard of the gaslighting term in the mid - late noughties, but it was then very 'localised' to fields of domestic abuse etc, and was only ever used to mean what it was originally coined for - what the husband did to the wife in the movie - ie an abuser trying to convince the victim that...
  14. JemPD

    GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

    :emoji_open_mouth::emoji_no_mouth: Stunned Edited: I had assumed that this was a newly developed thing. It's not it's from 2006 - see further on in thread. In which case it's not particularly remarkable given loads of people had never heard of gaslighting back then.
  15. JemPD

    A general thread on the PACE trial!

    Ah yes... i'm not sure how often i read the word 'false' in the lit, just aberrant & then unhelpful, but since the premise of the CBT for ME is that we beleiev we have organic illness when we dont, 'false' describes that. So regardless of how many times he has said the actual word 'false', to...
  16. JemPD

    A general thread on the PACE trial!

    I cant believe that Sharpe just said 'illness beliefs' was a straw man. I just cannot believe what i'm reading. I know i shouldnt be shocked, but i am. If they dont think beliefs about the illness underpin anything why are they targeting said beliefs in CBT. I'm staggered by that comment. I...
  17. JemPD

    Guardian Article on NICE pause

    Mike Godwin you made my night :)
  18. JemPD

    Guardian Article on NICE pause

    So disingenuous. As if huge numbers of patients dont say the treatment made them worse. "if you believe the patient you believe the patient" Indeed. But you have to believe them when they're not saying what you want them to say because they havent been asked leading questions/been manipulated...
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