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  1. Suffolkres

    SMILE trial data to be released

    What a great week we are having..... Brilliant news!
  2. Suffolkres

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I think we ought to organise a new celebratory tee shirt for David? Any ideas?
  3. Suffolkres

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Ahhhhhhhhh,.... as predicted Kate Kelland, Reuters and S Weasel, all doing their bit to reinstate themselves as 'experts'.....
  4. Suffolkres

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Only 9 donors to reach 1000...! $97,783 102% Raised toward our $95,000 Goal 991 Donors.... 993 Update, 7 donors to go!
  5. Suffolkres

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    No, he most certainly did not mean the patients or the other 'activists"!
  6. Suffolkres

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    $97,233 102% Raised toward our $95,000 Goal 989 Donors It would be good to get this over 1000.... the quick link has disappeared from top of S4ME!
  7. Suffolkres

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    https://crowdfund.berkeley.edu/ Surely Berkeley should have some sort of accolade /award to those academics on their books or worthy causes who bring esteem and glory to them.. DT tops the list again out of the current 19 active projects, again and again!
  8. Suffolkres

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    You are not the only one to use this term. Sir Mark Baker at the NICE Scoping meeting last year, in answer to my questions about dark forces lurking in the background, said to me, "Oh you mean the ME mafia......!"
  9. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    I thought this was a further testimony to our "activism', '.......vexacious or not'! I might ask permission to lift this and put it on our NHS Service blog and website! https://www.anhinternational.org/our-work/activism/ Activism “Change your life today. Don't gamble on the future, act now...
  10. Suffolkres

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Much as I find the need to Crowdfund a necessity in this modern age, having had to do it myself in 2016 for an environmental legal case with CrowdJustice in the UK, I have to say, I did find it stressful and a worry! So a double thank you to David for doing this for us, and I do hope the stress...
  11. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    28 April 2019 at 6:49 pm Thank you for this short pithy response to Jerome's excellent resume'. 'The claim that the cure for the crippling fatigue of ME/CFS was to change your mind always seemed bizarre. Now it really is on the way out…' Oh,.... if only .....and... I wish! NICE is currently...
  12. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    Jerome/statins/Adverse Effects etc.. Fascinated to find that Beatrice Golumb is also interested in CFS....... Buried in this artiticle/.... https://health.ucsd.edu/news/releases/Pages/2018-08-29-researcher-links-diplomats-mystery-illness-to-radiofrequency-microwave-radiation.aspx...
  13. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    Jerome/statFascinated to find that Beatrice Golumb is also interested in CFS....... Buried in this artiticle/.... https://health.ucsd.edu/news/releases/Pages/2018-08-29-researcher-links-diplomats-mystery-illness-to-radiofrequency-microwave-radiation.aspx ".....Golomb, whose undergraduate degree...
  14. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    I agree and will take matters further (Cambs & Peterborough) as it is our Clinical network area
  15. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    effects is reportedly low,” Golomb said. “Being vigilant for adverse effects in their patients is necessary in order for doctors to provide informed treatment decisions and improved patient care.” Worth quoting for GET approaches in patient info leaflets at Cambs and Peterborough insisted on by...
  16. Suffolkres

    Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

    The power of fellow professional's disbelief! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5316517/
  17. Suffolkres

    ME/CFS services in the United Kingdom

    "What would you do in my shoes?" Doing battle at Joint Health Overview and Scrutiny!! ...for 600 local group members..
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