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Talk about confirmation bias! The diagnosis remains constant because they miss the same thing all the time. If you decide acne is a sign of a mental condition then every time you examine someone with acne you will rediagnose that mental condition and think it is a robust diagnosis. Then to not...

They also found VP1 in muscle tissue and it might have been found in gut tissue as well.

It may not be relevant to what they are saying here, but one x chromosome is switched off in every cell in a woman. this is the barr body (?) that they used in sport to determine if someone was female or not. This switching off is one reason why one of identical twins can have a genetic disease...

When they started with their GET rubbish Ramsay said that what defines ME as a disease is that it is made worse by exercise so if anyone gets better with exercise they do not have ME by definition. LP cannot cure the biological deficit in energy production which is the hallmark of ME anymore...

They probably all got it at the same time. Coxsackie B gives you "summer flu". As usual with infections once you have had it your immune system remembers so that when you encounter the virus again it can fight it of so quickly you never realise it was there. Poliomyelitis, the disease, was more...

I also started being able to touch my toes after many years of ME but it felt as if I did not have the muscle tone to stop my body bending.

I can't remember who said it, he was someone in the medical establishment at the time of the royal colleges report. He said that ME was a new type of disease which was not physical or mental but held a strange position between the two. I felt at the time that you would need extraordinary...

They did a couple of brain biopsies in the UK just when CFS was invented and they found vp1 which is actual pieces of enterovirus. They also found it in muscle biopsies. Left to languish like so much else.

The first thing that comes to my mind is that The US researchers of CFS ignored the years of expertise and research of the UK experts in ME. After about 20 years they rediscovered the fact that it is not fatigue it is about the abnormal response to exertion. Now they seem to finally be talking...

It is meant to be an organisation that checks out papers so scientists don't have to read them all, a bit like a version of "Which" for the research world. In this it fails spectacularly as far as ME is concerned. Like everything else with ME the rules and procedures are fine, just that they...

It is another step in destroying the NHS. They need people to start disliking the NHS as it is too well loved to get rid of just now. Once relatives start dying of skin cancer because they already have asthma, people will back insurance based medicine.

I think that is what cochrane is supposed to be.

I hope that is the way it is :)

FND is so diverse nowadays we would need to know if they have interstitial cystitis or irritable bowel syndrome, dystonia or pseudoepilepsy! The confusion caused by ME becoming CFS repeating itself. But assuming FND actually means some sort of neurological problem they have found it can resolve...

I am very paranoid about the BPSers. Could they have been waiting for the revised risk of bias rules to be published so they could put out the review and say that the problems of bias levels in the complaints has now been resolved as there is no longer any conflict with Cochrane's rules?

Yes, there are different things happening and if it was better understood it could give clues to where the dysfunction causing ME exists. There is a background lack of function which could be said to be where we are mild, moderate or severe. Then we try to do extra and get a flare of PEM which...

Exertional intolerance is not the same as PEM. It sounds like a symptom of PEM. I wonder how this fits in with all the other findings like deformed red blood cells and increased anaerobic respiration. I have a prejudice about talk of hyperventilation because it was used as a way of dismissing...

:banghead::banghead::banghead:

I don't think it will be possible to predict PEM, it is just too variable. I have type 2 diabetes which most people can control with diet or medication. However my blood sugars vary dramatically and unpredictably because of my ME. The liver releases sugar if someone feels ill and there is a lot...

It is important that the likes of her and our friend Michael are shown to be unwilling to educate themselves about the latest science of a disease they claim to have expert knowledge of. They can only state there is no physical effects because they ignore every opportunity to find out that there...