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  1. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    The question in that tweet is answered in the transcript underneath the slide shared.
  2. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Transcript can now be found here, https://www.decodeme.org.uk/webinar-recording-and-transcript-march-2024/
  3. Andy

    Current understanding of nociplastic pain 2024 Yoo and Kim

    Nociplastic pain by the “International Association for the Study of Pain” is defined as pain that arises from altered nociception despite no clear evidence of nociceptive or neuropathic pain. Augmented central nervous system pain and sensory processing with altered pain modulation are suggested...
  4. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Recording of the webinar is now available on YouTube here Transcript will follow in due course.
  5. Andy

    New macroeconomic insights on the impacts of Long Covid in the UK

    "At an individual level, cost estimates of Long Covid treatment are now emerging with Mu et al. (2023) finding a cost per person with Long Covid of £3,350. This cost estimate is higher than for most other comparison groups considered over the period (January 2020 to January 2023). This figure is...
  6. Andy

    New macroeconomic insights on the impacts of Long Covid in the UK

    "Long Covid is now prevalent in the UK population, with the most recent estimates in March 2023 revealing 1.9 million people living with the condition, of which 1.6 million people are working age. With a growing evidence base revealing the impact of Long Covid on health and livelihoods, and...
  7. Andy

    BMJ - Cognitive dysfunction after covid-19 2024 Ladds et al

    Long covid and myalgic encephalomyelitis/chronic fatigue syndrome are overlapping conditions, 2024, McKeever Ladds and colleagues’ practice pointer explores the complexities of post-viral cognitive symptoms and provides guidance on management strategies.1 But there is no mention of myalgic...
  8. Andy

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Conflicts of interest are 'interesting', "Conflict of Interest Disclosures: Dr Ashar reports grants from the National Institutes of Health during the conduct of the study and personal fees from UnitedHealth Group, Lin Health, Inc, Pain Reprocessing Therapy Center, Inc, and Mental Health...
  9. Andy

    CrunchME

    "CrunchME is a volunteer project, mapping out the research, clinical, tech, and advocacy ecosystem around ME/CFS, Long Covid, and other infection-associated chronic conditions. Our aim is to help provide an information base to new and existing members, and so accelerate progress towards...
  10. Andy

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Trial By Error: Professor Chris Ponting on the NIH’s Findings and the Latest on the Genome-Wide Association Study Update https://virology.ws/2024/03/17/trial-by-error-professor-chris-ponting-on-the-nihs-findings-and-the-latest-on-the-genome-wide-association-study-update/
  11. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 11th March. Facebook: https://www.facebook.com/sci4me/posts/pfbid0vgU72aiCkGApwijgLDLnvYssL7cpjPPe7HuRHdwA1vzSAr5CEVwQaBdedhShYNHal Mastodon: https://med-mastodon.com/@s4me/112116296198634917
  12. Andy

    Psychosomatic Rehabilitation for Post-COVID 2024 Kobelt-Pönicke et al

    Abstract Aim of the study Post-COVID is characterized by a large number of different symptoms. The indication for medical rehabilitation is based on the main symptom. Insured individuals who suffer from fatigue and have no relevant organic disorder are often rehabilitated in psychosomatic...
  13. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 11th March. Facebook: https://www.facebook.com/sci4me/posts/pfbid0LjQgC1ZUZctoJhvk1QCmRJkDbHHVncbfGQjMZ5kTnz8eTEX7sySBNf8iCpFzKdvyl Mastodon: https://med-mastodon.com/@s4me/112110799889744156
  14. Andy

    The Significance of Chronic Fatigue in the Post-Covid Consultation and its Consequences for Outpatient Rehabilitation in the Context... 2024 Dalichau+

    Full title: The Significance of Chronic Fatigue in the Post-Covid Consultation and its Consequences for Outpatient Rehabilitation in the Context of Statutory Accident Insurance Abstract Objective The post-COVID consultation (PCC) is offered as part of a comprehensive range of treatment...
  15. Andy

    Preprint Changing patterns of multimorbidity among patients with ambiguous diagnoses: case of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2024, Bragée

    As far as I can see, "The ICD-10 diagnosis code for ME/CFS (G93.3) belongs to the 'General Signs and Symptoms' cluster", isn't right. G93.3 is the code for "Postviral fatigue syndrome: Myalgic encephalomyelitis", https://icd.who.int/browse10/2019/en#/G93.3, which belongs to "G90-G99 Other...
  16. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Current total is 10,578 https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  17. Andy

    Neuronal dynamics direct cerebrospinal fluid perfusion and brain clearance 2024 Jiang-Xie et al

    Study Suggests During Sleep, Neural Process Helps Clear the Brain of Damaging Waste We’ve long known that sleep is a restorative process necessary for good health. Research has also shown that the accumulation of waste products in the brain is a leading cause of numerous neurological disorders...
  18. Andy

    Neuronal dynamics direct cerebrospinal fluid perfusion and brain clearance 2024 Jiang-Xie et al

    Abstract The accumulation of metabolic waste is a leading cause of numerous neurological disorders, yet we still have only limited knowledge of how the brain performs self-cleansing. Here we demonstrate that neural networks synchronize individual action potentials to create large-amplitude...
  19. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    They obviously didn't want to address the behaviour and wanted to focus on the disagreements about the project - it was a deliberate re-focus.
  20. Andy

    Etiological Factors and Symptom Triggers in Functional Motor Symptoms and Functional Seizures: A Pilot Investigation 2024 Millman et al

    Authors include Anthony S. David, Mark J. Edwards, Trudie Chalder, Matthew Hotopf and Susannah Pick Abstract Objective: This study examined etiological factors and symptom triggers of functional motor symptoms (FMS) or functional seizures (FS) and assessed potential relationships with relevant...
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