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An example of real harm and a potentially fatal situation caused by ignorance and gaslighting. Edit: by harm I mean her not seeking care sooner and being misdiagnosed with depression. Ms. R, 31 years old, developed ME/CFS after a moderate bout of COVID-19 in 2023. The symptoms of COVID-19...

There was no correlation between symptoms and satisfaction. They did not control for all common demographics. I’m not surprised if people are less satisfied with gaslighting..

Looks like SB431542 has been around for over two decades, but there are no studies on humans yet. https://www.stemcell.com/catalogsearch/result/index/?category_option=Documents&parent_skus=72232&q=72232&resource_type=Reference

That still can’t explain how the upper bound per person is 11k. 11k is 1/6 of the average yearly wage. Unless tended means that they’ve just shown some kind of median value and the actual spread is a lot wider. If that’s the case, it’s very misleading. Nobody will read the abstract and suspect...

The average US salary is $66,000, so $10,000 would account for 2 months of lost productivity due to the absence from work. I don’t have access to the paper, but I’m almost suspecting that they might have used taxes instead or income? The average tax rate is 14.5 %. Of 66k, that’s about $10,000...

I think it’s short enough to post here: Thank you for your interest in our systematic review. We have with interest read your suggestion that the certainty of evidence could have been rated as 'low' or 'very low' due to imprecision and inconsistency...

Am I correct in saying that this ‘review’ is mostly just a summary of their previous work?

I believe you’re correct. They say this:

I wonder what we would get it if we could feed that data from DecodeME into one of these models? Also, this warning will always be appropriate: No model is infallible, Dr. Zitnik said. A.I. can sometimes make predictions “based on evidence that isn’t sufficiently strong.” Dr. Colvis said...

I wonder how many people with ME/CFS or LC that gets an initial diagnosis of depression? I can certainly see how lockdown and a pandemic would have a negative impact on mental health, so some increase to depression is expected.

So out of touch, people don’t watch Flintstones today! /s

Another terrible summary of what ME/CFS is. But the article itself is free of any BPS.

So nice to see that everyone are able to come together to work towards the noble cause of smothering the bothersome sick people.

I fear they are just going to perpetuate the bad practices from elsewhere. If you want to learn from others, it might be a good idea to ensure that they know what they are doing. Industry standard doesn’t make it scientifically sound.

They looked a 977 patients in total. Of those, 82 had biopsies after LC and 3 had from before LC. I don’t know why they had biopsies, maybe they hade the worst symptoms?

Can we say that based on 50 patients?

Good point! But they could spin it to argue that it’s possible to keep up your activity level despite of the symptoms, and that the symptoms will eventually be unlearned if they keep at it.

This section reads like a business management report! It seems like they are trying to position themselves for grants and funding. The article is among the top 1 % on terms of readers and it was cited twice on the day it was published: Evolving concepts in sepsis: we are making progress...

Thank you! So they only looked at first time infections? Am I correct in saying that only 137 out of 7839 individuals with persistent symptoms after an infection reported both fatigue and shortness of breath? This would certainly indicate that the category of ‘persistent symptoms’ included...