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Thank you for correcting me! Seems like I should go back and read the thread on the study, I’ve seemingly picked up a lot of misinformation from other sources.

This is second hand information on my part, so I trust your knowledge on the topic. Wasn’t the diagnosis based on a consensus rather than a set of criteria? Again, I’m very open to be corrected.

You’re doing so much for us, Trish. Your efforts both here and outwards enables me and others to advocate with accurate and well-articulated arguments that would have been outside our reach if it wasn’t for you. Thank you!

How many «items» did they test? There are some high <0.05 p-values that could indicated random noise if they tested e.g. 200 items. You’d expect to find 10 items with p<0.05 in that case - assuming I have not misunderstood how p-values work? Regardless, we need a replication study (with more...

What are the implications of this finding?

Better follow-up and detection of infections and outcomes? i’m assuming a cancer patient with new LC-brain fog won’t get dismissed as psychosomatic.

Why would you want to keep reviewers around if their reviews are so flawed that they have to be retracted? Surely this heavily implies that they want to keep certain opinions around, not expertise in general. Otherwise, they would use this occasion to get rid of sub-standard reviewers through...

@poetinsf Afaik, the brain is an analogue computer, so it’s all hardware. The software/hardware divide makes no sense.

Covid has it’s own host of cognitive problems ik addition to the normal ME/CFS ones. Many people experience lasting cognitive symptoms without being close to an ME/CFS diagnosis, and some patients with severe ME/CFS due to Covid are doing fine cognitively (including myself). I get brainfog from...

So the BPS lobby preemptively claimed that they had gotten a formal assignment with regards to ME/CFS, but all they had was a proposal from themselves? And they ended up pulling out of it on their own? I’m not up to speed on the roles, so I might have gotten things wrong?

LC defined as symptoms for longer than 4 weeks. Unexpected. Does anyone know the current estimate for the prevalence of LC in the general population? If anything, this might lead to some cancer funding to study LC in cancer patients.

Open-label, subjective outcomes, and recommending widespread use. They got it all!

Young healthy participants with regular sleep schedules were recruited from the general public as described previously (26, 58). Participants either followed the protocol of a sleep deprivation experiment [experiment 1: n = 12 (25.6 ± 3.9 years old, one female), experiment 2: n = 11 (25.2 ± 7.4...

If the objective is to figure out IBS, then yes. I have had IBS for over ten years. It changed after I got Covid and PEM as a result of that. If the objective is to figure out ME/CFS, being strict about having PEM makes sense. The effort preference NIH study did not make sense because they...

He also talked about pacing up.

Any reason to believe that activity levels could affect SFN?

And blinding!

Any suggestions on how to do that? And what’s the target group?

Wide definitions lead to more heterogenity in the studied population. This added noise makes it more difficult to find patterns and results. When we have limited resources, it makes sense to study only the strictest definitions first, and then expand the inclusion criteria once we have...

We would be branded as delusional and in even more need of treatment.