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Without baseline measurements before their infection it’s difficult to say anything about cause and effect.

Completely anecdotal: I know of one man that was bedbound for many years. He ‘woke up one day’ and was recovered, according to my sister that knew his daughter well. I know of one man that reportedly recovered through LP. He was bedbound at worst, and has worked full time for years after. I...

My very limited knowledge on this topic tells me that the mitochondria will consume pretty much anything you give it if it has to. That might be completely wrong?

New note:

What does changes to water motion in the perivascular space mean in practice? Are those changes transient - and what could possibly cause them to be different between patients and controls?

My impression from listening to the patient representatives that actually sit in the room with the people involved in the new guidelines, some of them are genuinely trying to do good and neutral work. I don’t think we should jump to conclusions of things being rigged on purpose just because the...

Where do you get NSAID for PEM pain from? Afaik, there are many patients that report that nothing helps for their pain, so at best, it must be a subgroup that responds to NSAID?

Can we do this for non-drug treatments as well?

That’s bad..

Vink M, Vink-Niese F. Are cognitive behavioral therapy and a group physical and mental health rehabilitation programme effective treatments for long COVID? Rethinking of a systematic review. SciBase Neurol. 2025; 3(1): 1026. PDF Link Thread on the review that the paper criticises...

Would we have to account for the anecdotes of LP recoveries as well?

Regularly questioning your assumptions is probably a good quality when trying to figure out something difficult!

I’ve had this for a few months. It coincided with very little sleep, but I believe the worsening came a few weeks before the most severe part of the sleep issues. Nowadays, my head wears out during the day and somewhat resets if I get enough sleep. I have a history of getting far too little...

That’s a good point that I don’t know how to answer!

It’s not a test to see if something is the ME/CFS mechanism(s). It’s a test to see if it can be the ME/CFS mechanism(s), because whatever it is, it has to be able to explain the features we’ve observed.

After reading the conclusion again, I noticed that the only said there’s a need to figure out how to best deliver interventions to different groups, not how to best deliver these interventions. Not that the BPS lobby has a good track record of honest interpretation of statements..

Reme already has a study on hypnosis of breast cancer patients before their surgery. With funding from Kreftforeningen! I would assume they would be opposed to BPS BS, but that’s apparently not the case.

I have to say I’m a bit worried about this review. Specifically, I’m worried that it’s going to be used as an argument to provide relatively meaningless treatments just because some patients in mostly flawed studies said that they liked it. There’s a summary in English in the full report, but...

‘There’s no cure, so here’s how to cure it regardless.’

I have massive problems with that as well!