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    Investigation into cognitive behavioural therapy for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2020, Clark

    Allegedly, no. Apparently, CBT can be used to help the patient adjust to new limitations imposed on them by an illness or what have you. So, for example in the case of my pal, among other things she learned to recognize where she needed to say no and techniques to help her say no to other...
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    Investigation into cognitive behavioural therapy for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2020, Clark

    I 've heard of people who supportive CBT and found it helpful. A friend and I were having what was rapidly becoming a heated argument re CBT. She is mild-moderately affected by it and was very pro CBT. It suddenly occurred to me to ask what she meant by CBT and what the therapist actually...
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    Investigation into cognitive behavioural therapy for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2020, Clark

    Well...which definition of CBT are we using today folks? From And So supportive as opposed to directive CBT. I don't have an issue with that as it's understood that this is an optional, adjunct therapy and should never been seen as an effective stand alone therapy for ME patients. Some ME...
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    O'Dowd-Crawley early intervention study

    I think this is the thing - I wouldn't hold my breath for an apology, but unless the person in question has demonstrated that they have changed their minds and learned from past mistakes & ensured that, where appropriate, corrections have been issued then I think it's fair to assume nothing has...
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    Prevalence and Treatment of Chronic Fatigue Syndrome/ME and Co-morbid Severe Health Anxiety, 2019, Daniels et al

    I fail to understand how "Bags" Daniels or anyone else who has had contact with anyone with ME (apart from the very mildest and most recent onset) doesn't learn the opposite is true. Most of us are too sick to interact much with the NHS at all. They tend to make it difficult. I know I have...
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    Functional Neurological Disorders - discussion thread

    I suspect it was a group of blokes sitting round a table and making it up as they went along. Based on consensus/committee rather than scientific evidence. Presumably, the idea was that it would develop and adapt as new information came to light. Then you have people.....empire building, self...
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    Trial By Error: CBT and Irritable Bowel Syndrome

    I would assume she means cutting down on clinic time spent on these patients in addition to reducing the costs of prescribed medication etc.
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    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    @Simon M - I don't know how typical this would be, but for those sporty families, better knowledge about sports and overall health might make a difference. One of my best student pals was a rugby player, all his sons played for their region in the usual age groups. As my pal aged he coached...
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    Maximal handgrip strength can predict maximal physical performance in patients with chronic fatigue, 2020, Jammes et al

    I'm not so sure about this, perhaps I've got the wrong end of the stick? I have always had very strong hands and I'm not sure that my level of function would be accurately assessed by this. Although I am a small female I was always very strong for my size. Surprisingly so. Probably to do...
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    ClinicalTrials.Gov: Rehabilitation of Adolescents Living With Chronic Fatigue (2019 Protocol for 2021 trial completion)

    From the link to The Handbook of Salutogenesis in @rvallee's post #11 above Right. So as those "bastard" patients don't want to get better and the science is much to hard. Rules and whatnot, even if they're usual twisted to suit. We'll ignore all that. Yeah, just teach them to be healthy...
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    ClinicalTrials.Gov: Rehabilitation of Adolescents Living With Chronic Fatigue (2019 Protocol for 2021 trial completion)

    I know, I'm just trying to get my head around why these guys are just doing the same thing again and again, over and over. Utterly pointless.....and they get paid to. :banghead:
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    Trial By Error: CBT and Irritable Bowel Syndrome

    Either way, it's misleading and the company who published it are responsible. In my old job any document being written for, or shared with other departments or clients had to be proof read by two people. At least one of those had to be technically competent enough to catch tech errors and the...
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    Trial By Error: CBT and Irritable Bowel Syndrome

    So now they're claiming CBT is effective as a primary treatment rather than an adjunct therapy. At least this is how that reads to me. Deliberately misleading.
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    ClinicalTrials.Gov: Rehabilitation of Adolescents Living With Chronic Fatigue (2019 Protocol for 2021 trial completion)

    I love that precisely 7 dialogues are required, albeit individually tailored. What the hell is that about? Increasingly I wonder if these guys have a bet on. How much can they get away with before someone in their healthcare system or government cops on to the fact they're being ripped off on...
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    ClinicalTrials.Gov: Rehabilitation of Adolescents Living With Chronic Fatigue (2019 Protocol for 2021 trial completion)

    A quick scan shows the primary focus the symptom of fatigue & the assumption that mixing those with chronic fatigue and chronic fatigue syndrome is a-ok. What could go wrong? Once again, death by questionnaire. Those unable for whatever reason to take part in the "dialogues" or fill in the...
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    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    I suffered IBS for years and years.... Eventually I got it under control. It turns out for me too much sugar and refined carbs are the issue. Limit those and I'm fine, no cramps, no mad dashes to a loo, no medication. I discovered IBS was often worse on holiday, when I was relaxing and...
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    Blogpost by Super Pooped (Hannah Radenkova): What no one tells you about being Housebound

    I remember discussing the whole being stuck at home bit with an assessor and telling them, while it might be nice not having to get up early on a miserable grey Monday morning and battle into work with everyone else, it also meant I never got to have that Friday afternoon feeling.
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    University of Victoria (Canada) article on development of EEG wearable

    Yes, I see what you're saying. However, when I was well enough to be out and about more there were definitely times that my cognitive function and spacial awareness started to tank. Not just for an hour or two before I completely hit the buffers, but days when I was definitely way below par...
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    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Remember Jessica Bavington? https://vitality360.co.uk/about-us Edit - yep it's all about rehabilitation.
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