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    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    I imagine GPs have a lot of reading to do about all sorts, including admin stuff, all of the time. This will be seen as reference material and not something to sit down and read cover to cover. There's no harm in them having a copy for reference though. It makes it far more likely that if a...
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    Does anyone else experience soreness in the back?

    I have zero medical training or knowledge but from my own experience I tended to find constipation related back pain was more lower back (for me at any rate). I had a lot of problems with IBS so it was either mad dashes to the loo or not going for days. If I haven't been properly supported...
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    Trial By Error: CBT and Irritable Bowel Syndrome

    Yes. I wonder if it would be within the remit of advertising standards? Could the literature it appeared in be classed as advertising?
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    Maximal handgrip strength can predict maximal physical performance in patients with chronic fatigue, 2020, Jammes et al

    Sorry can't seem to cut and paste from the document itself. Within the document it states the test doesn't distinguish patients with chronic fatigue from those with chronic fatigue syndrome. The test is a single event - 3 maximal grip tests held for 5 seconds with the strongest grip being used...
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    Living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A description of adult experiences, 2020, Essebo & Joqi

    If you have the resources then it might be worth contacting the tutor. If it works out then the next batch might of nurses might be a little better informed. Like you @Anna H I can see issues with every quote in your post. Especially - I completely fail to see how a nurse telling you about...
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    Maximal handgrip strength can predict maximal physical performance in patients with chronic fatigue, 2020, Jammes et al

    I agree @adambeyoncelowe, I'm not trying to throw spanners into the works for the sake of it. I am concerned we ensure that any test carried out is testing what we think it's testing and does it as accurately as possible. That there is some way of ensuring it is carried out properly - who...
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    Low dose hydrocortisone as a treatment for ME/CFS

    I've had high dose one off injections occasionally because of allergies. I too felt very wired and edgy. I just assumed that was the symptoms of the allergy and being in A&E, but now I'm wondering if some if it might have been a side effect of the steroid.
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    Maximal handgrip strength can predict maximal physical performance in patients with chronic fatigue, 2020, Jammes et al

    It depends on how this test would be used @adambeyoncelowe. Quite right in terms if pacing, but I would have been initially stronger and possibly with less fatigability. I have become worse over time going from moderate to severe. Well, I would now but in the earlier years I wouldn't know...
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Yes, unfortunately it is. Loath though I am to criticise a fellow patient who just wants to get well, patients who claim to have been cured by treatment X and then by treatment Y and then something else fuels this kind of patient as attention seeking or learning illness behaviours from other...
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    Using adrenalin/epinephrine as a crutch ?

    I did meet someone who had been prescribed speed by their ME doctor. She was mildly affected at the time and still working. She crashed very badly.
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    News from Scandinavia

    A fine example of balanced reporting..... Interviewed, but didn't report what was said. Moves straight onto as is Prof Wyller whose views are reported.
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    News from Scandinavia

    Oh, he forgot to mention wandering womb.....
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    Maximal handgrip strength can predict maximal physical performance in patients with chronic fatigue, 2020, Jammes et al

    I can see some benefit to that, but the issue around the fluctuations in ME might result in a misleading entry on the patient's notes. I usually wait until I am well enough to go to the GP, so they will see me at optimum performance, fatigability being variable in my case. The better my...
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    generic pharmaceutical fraud; book, “bottle of lies“.

    There's another issue, in Europe at least. Fake drugs making they're way into the supply chain. Apparently, there's big money in it.
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    Low dose hydrocortisone as a treatment for ME/CFS

    Thanks for the link. So they tested for a period of a month. One group on 5 or 10mg for a month and the other a placebo. They conclude further, longer term research is required. Someone who knows more about this (almost everyone I suspect) please correct me here if I'm wrong. One of the...
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    Low dose hydrocortisone as a treatment for ME/CFS

    Well, how low is low dose? I've seen what long term treatment of steroids can do to a person. I would want some guarantees not "may" or "might" for "some" before going down that path. Especially, if we're talking long term.
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    Cortisol levels in Chronic Fatigue Syndrome and atypical depression measured using hair and saliva specimens, 2020, Cleare/Chalder/others

    I think lots of things might mask the onset of ME. My own clinical picture was confused by hypothyroidism and borderline a anaemia. My hypothyroidism wasn't well managed as the GP at the time felt TSH and T4 levels in "normal" range should relieve all symptoms. Then we have the effect where...
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    Using adrenalin/epinephrine as a crutch ?

    I would be very wary of using adrenaline or epinephrine this way. I know some of us find that sometimes a period of stress may seem to cause a brief window of feeling well. Then the PEM hits. I think of it in terms of using a high performance fuel in a vehicle that isn't "tuned" to run on...
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    Investigation into cognitive behavioural therapy for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2020, Clark

    This brings us back to the issue where treatment provided by some clinics, while being called CBT, is not the standard recommended (directive) form. Lack of records of harms by clinics, combined with the better clinics quietly operating outside the guidelines to the benefits of their...
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    Gaslighting's evil twin siblings: Brandolini's Law of the Asymmetry of Bullshit and Gish Galloping

    The difficulty is when the perpetrators also manage to get their false message, erroneous information out first thanks to undue influence with the media. Before you even open your mouth you're forced into the role of being defensive, or in denial. However, I also believe people choose to...
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