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I misread this as Twenty-two adults randomly diagnosed with CFS were assigned to experimental groups. My first reaction was :eek: and then I, well it's as about as good as the modified London criteria, if not the Oxford criteria. Frankly, if I was somehow trapped into this kind of guff, I'd...

Yes. This is what I've been told but I've heard doctors that ME patients won't take them because they're described as an anti depressant. Ignoring that it's the side effects from taking them that are the issue. Mind you, I also had one doctor who wanted me to try an SSRI (can't remember which...

I've tried all sorts amitriptyline, SSRIs, NSRIs. Prescribed for both pain and sleep problems. Couldn't get on with any of them. I might feel a bit drowsy temporarily and then suddenly wide awake and absolutely exhausted. Very prone to "hangover" effects even from drugs that supposedly...

:hug: @arina83 Yep. I grew up in a community where you always helped each other out, respected each other and were considerate. Whether you need a hand or not, life is a lot better when you know people around are supportive. :mad::mad::mad: Unforgivable! I admit I am very, very fussy...

It's a hard place to be @arina83. Too sick to be able to work without payback and not ready psychologically or otherwise adjust to or make the leap to disability - if that's the point you're at. I don't think anyone here necessarily advocates staying in bed all day - unless you actually need...

I struggle to understand why agencies worldwide have allowed the idea that only certain groups are vulnerable and the rest won't be affected - the influence of behaviourists possibly? Sure in these days of social media influence it wouldn't have been such a terrible challenge to make putting...

I have no easy answers for you @arina83 but would agree with @Trish's suggestions. Being part of a couple vs being single with ME is something that's come up a number of times over the years. There are plus and minuses on management to both. I also know people who ended up divorced and losing...

I'm waiting for payday so haven't donated yet- big dental bill this month :(. So about ⅓ of the target raised in ⅓ of the time allowed to raise it. Hopefully, there'll be plenty more like me who will be donating but need to wait a week or so for funds to come in.

For me the role of psychology goes way beyond the good vs the bad. There's the question of when is it appropriate - if for example you identify that childhood poverty might affect a person as they develop to adulthood then is it appropriate to simply focus on the psychology of the individuals...

I have seen that played out on Facebook pages so many times. Any attempt to express a different opinion, however carefully or politely & instantly the accusations of bullying and discrimination fly. It's okay for them to label me, you or someone else. It's not okay for you to question that...

I can't speak for Ninna Jonansson but I have met this kind of attitude before both from a family member and outside family. Particularly some ME patients I met in the early years and also online. Without any investigations or desire to investigate any physical or other causes of health...

It's a fantastic marketing ploy this whole PTSD business. If you can label someone with any poorly understood health condition & without a clear prognosis has having PTSD then you can divert them into mental healthcare they don't need, gaslight them by denying their reality and trying to impose...

Sean O'Neill I appreciate the guy's input - we need all the help we can get but I wonder if he realizes the true scope of the matter here. It's a bit like seeing a tree & think all that you see is all that's there - nope -hidden away are big roots branching off into increasingly smaller roots...

Yeah, sadly in the modern world, unless you're very lucky, you may not have much help with day to day tasks. Mum's parents are probably still working themselves, if they're still around. Life as a new Mum must be a blooming nightmare with covid, especially if you've got some additional...

I would say they appear to hold sway. Lots of people read who don't tweet. Shouting loudest & being an a**e may appear to win them the twitter argument but to people who know them in real life? Real risk of alienating people important to them & never realizing. Amazing how many people who...

Lovely. Speaking as a woman who has never given birth. You have your C - section, which while routine is still fairly major surgery. Your bundle of joy (who is also probably extremely hard work and needing to lifted regularly for feeding and nappy changes and so forth) safely delivered...

This is a heart sink tweet if ever I heard one. I say this as a fan of yoga - though I have been unable to physically practice asanas for a long time now. The old, I did it while recovering from cancer it was wonderful....... I've heard this said about so many things. Just because someone...

Edit - cross posted with Kalliope - referring to Hmmm.... Not bad but the article makes it sound a bit as though ME is recognised now and the discrimination is a thing of the past. We wish. Also that ME was first reported 40 years ago. I doubt this is true. For example I know of fellow ME...

Compared to many of the people who replied to the thread I would class my breathlessness as occasional and mildish. It doesn't happen all the time to me. So I could go for a walk tomorrow and struggle (especially if walking up a slope) but next week I could do the same walk at a similar speed...

I think you both have a point. Yes, we do need to treat others kindly and supportively whether they are newly ill with covid or ME or whatever. It is a frightening time and extremely stressful time with a steep learning curve. It's also a time when you are most likely to be kicked in the...