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  1. M

    Poll: Are most ME symptoms in beginning driven by drastic impairment of glucose metabolism?

    I responded ‘I don’t know’ but would have answered ‘I would suspect so’. I have gained a significant amount of weight (100 lbs) in the first year i got sick without changing my diet. Of course i was more sedentary, but i believe there was more to it than simply becoming a couch potato. Of...
  2. M

    Treatment of ME patients in ERs and Hospitals

    There is a lack of scientific literature in regards to anesthesia and patients with ME. Many of us have a problem with epinephrine in the local freezing and i do not believe this has been researched at all. It would be interesting to survey patients in regards to peri-operative complications...
  3. M

    High-fidelity discrete modeling of the HPA axis: a study of regulatory plasticity in biology (2018) Sedghamiz et al.

    New paper from Dr Broderick’s team. It seems to me that this would be a first paper and that other are in the works. Abstract Background The hypothalamic-pituitary-adrenal (HPA) axis is a central regulator of stress response and its dysfunction has been associated with a broad range of...
  4. M

    Red-brown speckles on palm of hands and fingers

    I did have bruising while on Aspirin following each of my surgeries. i am not on Nimodipime but i looked up the side effects and bruising is one of them.
  5. M

    Stat News: Tuller & Lubet: The medical community is changing its mind on chronic fatigue syndrome. Why aren’t insurers?

    Quite a few patients committed suicide following Wessely’s visit in British Coumbia which was late 1980’s or early 1990’s. If I remember well, from someone who lived through it, it was over 20 patients.
  6. M

    Red-brown speckles on palm of hands and fingers

    Bingo! Both of these meds can cause bruising. I would not worry too much unless you have excessive and apparent bruising everywhere.
  7. M

    Red-brown speckles on palm of hands and fingers

    It might be minor spontaneous micro-bruising. Nothing to be alarmed about. It may happen if you are on blood thinner but also for other reasons or no reasons at all.
  8. M

    Functional Interrogation of Primary Human T Cells via CRISPR Genetic Editing (2018)

    Functional Interrogation of Primary Human T Cells via CRISPR Genetic Editing Dr Unutmaz is one of the principal investigator of this paper. http://www.jimmunol.org/content/early/2018/07/18/jimmunol.1701616?papetoc Abstract: Abstract Developing precise and efficient gene editing approaches...
  9. M

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    Patients in hospital have all kinds of needs. They sign consent to care. An assessement is continually done throughout the day and the night to ensure patient safety, for one and in order to personalize care according to needs. For instance, if you notice a patient wobbly on going to the...
  10. M

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    Clearly, you are not a nurse and whatever i say will be responded by an angry answer. So I will stop argueing and say that we are currently on the same side, living with ME and having been stigmatized, ridiculed traumatized and insulted by the health care system. There is the capacity for any...
  11. M

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    I agree that BPS in ME is for the most part, all wrong because there is a repression of the biological part and because there has been an abuse in P and S. Anything else than bio-medical will be viewed as suspicious until we have a genuine interest and until patients receive meaningful care...
  12. M

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    That is exactly what is needed. Instead of sending the patient home and cash up their check, for once, they could speak up. Their voice can be powerful, if they use it. It reminds me of when the doctors decided to speak up about the fact that refugee had to pay for health care. They stood up...
  13. M

    Checking our blind spots: current status of research evidence summaries in ME/CFS (2018) Davenport et al

    Bravo! thank you Todd E Davenport, Staci R Stevens, J Mark VanNess, Jared Stevens, Christopher R Snell. You are true heroes.
  14. M

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    Don’t get me wrong though. It is coming from a nursing perspective. When I visit a doctor, it is because i want my medical issues addressed. I expect medicine, not psychology, not plattitudes such as ‘you have to meditate, healthy mind, healthy body’. From my perspective, family practitioners...
  15. M

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    hi Tom, the Wessely and White type of BPS (precipitating and perpetuating factors) are one dimension of BPS. From my nursing training and likely from that OT on the ME association website, bio-psycho-social simply means that the whole aspect of the person is cared for, not just the biological...
  16. M

    ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

    I am a registered nurse and when I was trained we learned about the bio-psycho-social model of care. I believe it is thought across all allied health care fields. i believe there is a time to address ‘bio-psycho-social’ dimensions, usually it is when the patient asks for it. The medical and...
  17. M

    Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

    Some of the best researchers in the world, notably Dr Lipkin (the virus hunter) and dr Davis looked for signs of infection and did not find it. It is truly painful to return over and over to past theories which haven’t gained much momentum except for 2 physicians, one of whom sells his own...
  18. M

    Reduced glycolytic reserve in isolated natural killer cells from ME/CFS patients: A preliminary investigation, Nguyen et al, 2018

    Pilot studies are meant to be small. It is designed so they can explore hypothesis without too much financial and human ressource investment. Since they seem to have found something, it will give them power to apply for some grants to either expand on a bigger cohort, or try the same experiment...
  19. M

    What research do you want to see? (study ideas)

    I would like to add a research suggestion: Compare patients with myasthenia gravis to ME patients in all ways possible. the recent ME/CFS Alert video interviewing Dr Systrom from Brigham hosp in Boston seemed to have good success with a MG drug.
  20. M

    Dr Nacul to provide care for moderate and severe patients in Suffolk

    This may work for addressing sleep, or upset stomach, or any issues that are easy fix for a family practitioner. However, this system will not work well for complex diseases requiring specialist care. (And I believe ours is in dire need of ammedical specialty which would notmonly see patients...
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