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It is because Canadian blood banks (also affecting blood products) did not test for Hep C during that time range and people may have been exposed to Hep C may it be from birth, or other mean of getting it (blood transfusion, blood-blood exposure such as sharing needles).

This is a sad reality that most of us will experience at least once.

This is unfortunate- we need squeeky clean science and mainstream doctors to translate the knowledge into treatment protocols, biomarkers, and drugs that work. Those who advance hypothesis must be ready to face their peer for review and must have their results replicated. The problem we have...

Viral illness is very common in cyclists. Epstein Barr is notorious to take quite a few months to recover from. Cyclists train in harsh conditions day in and day out, they can be on the road for 6 hours every day. One of the worst thing athletes of that caliber can do is to push themselves and...

Agreed. Symptom management is not treatment. And by symptom managment, i include both pharmaceutical, dietary and behavioral approaches. Those are not treatments.

@Luther Blissett you may be disappointed of the direction of the discussion that ensued, but people here have a right to discuss on the topic, and others have a right to agree or disagree and add their own contribution. As an aside i do have empathy for all patients suffering and living through...

Hello @Binkie4 It would be important to contact the company as soon as possible an dlet them know that your wheel chair has been dammaged. If the dammage is visible, take a picture. See what they say. I would hope they would cover the cost of repairs. You could also review the terms of travel...

To be fair i have not watched ‘Afflicted’, and considering the responses here and on social media, I am not planning to watch it. I am very sorry that a very vulnerable patient population is being used as entertainment and I am very sure that the patients who gave their time and energy and never...

Look at the title: ‘Treating Lyme disease with a Tens machine’. It is not a science based treatment. It is not a national treatment guideline for all ME patients. It is a fee for service for desperate patients willing to spend a couple grands. There is no evidence, just hypothesis. And while the...

Joining forces with other groups would make sense. However when you join forces with groups that want to convince you that you have lyme, that you need antibiotics and a central line, that you should avoid all wireless technology, that you should give up all belongings and go live in the desert...

Carbs are not bad for us. What is bad is extremism, eliminating a whole food group. I heard someone telling about her doctor recommendation (a doctor specializing in ME and similar diseases) of ketogenic diet, and I cringed. We have no good evidence. The metabolomics study is a scientific in...

This might be the first time i read you being excited about a ME paper @Jonathan Edwards. Your threshold is usually high. Thank you for sharing these comments.

Yes.

It’s not only going to and coming from. It’s changing into a bathing suit (from girl perspective, it can be hard) it’s facing the noise and smell of chlorine. Walking to and from the change room and the pool, to and from car and the center, and then to and from car and home. In my view like it...

Canada I read the abstract, not the paper. The abstract omits ME/cfs. He did not explicitly exclude it. I am not entirely sure whether he mentions it in the paper but unless he writes a paper with “ME/cfs is a physical illness and not CSS” I will still kick and fight against CSS. CSS is...

We are living this nightmare in my community. The local program is rebranding ME, fm and post Lyme as CSS. While they dropped the ‘exercise as treatment’, they are very focused on group therapy, meditation, acceptance therapy and anything but medical care. In fact they are even saying that POTS...

Yeah, let’s not spend any money on investigating patients with vague symptoms. (Hear my sarcasm) Let’s put the patients in group therapy so they get educated about CSS and the fact they need to go on a merry-go-round of alternative therapies including psych therapies, so instead of getting...

I had a muscle biopsy done early in my illness. The mitochondrial DNA was sequenced and deemed to be normal. As for the biopsy, there was a comment made about my slow twitch fiber (aerobic) that was atrophied. Whether it was simply due to the deconditioning process or a pathological process, I...

The solution is not creating a fee for service, especially in a socialized health care system setting. Patients deserve access to competent health care regardless of their disease and regardless of their ability to pay. Doctors who actually charge patients can be prone to sell snake oil and...

Let’s see what the paper will bring. It’s all that matters to me. We are due for good news.