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People who like Apps think they are the solution for all issues.

Yes from the experience I had trying to use social media to promote a local MillionsMissing event it takes a lot to get any traction and you have to get the word out through a range of people. I found it surprisingly difficult to achieve. ME social media seems to be rather a bubble.

Cosmo quiz

The civil servants will have written this reply so really it’s their error not the minister who shouldn’t be expected to know the exact title of every set of NICE guidelines. The team will only check it against what they submitted so may not pick up the error. You would hope someone in NICE...

Yet not all of them filled out all surveys - did they not stop to ask why their participation rate was poor, clearly not rocket scientists

Publicity article touting for trade

This tells us what a big job it is to overcome all the impact of this type of ‘training’

Signed. agree @Lucibee the 2 petitions are complementary

I had my booster, my third Pfizer, 10 days ago. As before only effect was a very sore arm that lasted about a week and PEM from going out for the appointment.

I refuse to click through to give this traffic.

Sunset Boulevard the Andrew Lloyd Webber musical from the 90s where some will have heard of it

Great effort

I was thinking more a slice of tripe :whistle:

I can’t see this as anything but positive, has there ever been an official meeting between the Health Secretary and researchers looking at the biology of ME. Or even a junior minister for that matter. couldn’t even have envisaged this a couple of years ago

Would be good if could actually get it retracted using the approach @Lucibee is suggesting. Only need to address the content if that doesn’t succeed.

Certainly the CFS clinics are not all that either and only a small minority have any medical involvement. The best thing probably @Tara Green may be to seek out others in your area - maybe a local Facebook Group? who may have had contact with the CFS clinic to find out what actually happens.

Surprised at the suggestion the CFS clinic would do any tests at all I don’t think that’s the norm. Unless they count the questionnaires as tests. Maybe they got it the wrong way round.

Ausgezeichnet

Well done @Ariel

Maybe worth contacting him to see if he’s got it on his radar again