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  1. NelliePledge

    Please help me find new bedding in the UK

    I’ve got some of the sheets and they are definitely softer than my 100% cotton sheets they are a tencel/cotton blend
  2. NelliePledge

    Please help me find new bedding in the UK

    I have a flat sheet under the duvet so it doesn’t matter too much what material the duvet cover is .
  3. NelliePledge

    BBC Article: Long Covid: 'I have to choose between walking and talking'

    I like that this has been in the bbc news website list of 10 most read items all day
  4. NelliePledge

    ME/CFS services in the United Kingdom

    What a rip off.
  5. NelliePledge

    Blog Psychology today: Differentiating Fibromyalgia, Depression, and CFS

    Self styled ‘successful clinical writer in the mental health realm’ :whistle:
  6. NelliePledge

    No signs of neuroinflammation in women with [CFS] or Q fever fatigue syndrome using the TSPO ligand [11C]-PK11195, 2021, Raijmakers, Knoop et al

    Yes I worked out that paracetamol was a better option for me. Paracetamol is for mild to moderate pain.
  7. NelliePledge

    No signs of neuroinflammation in women with [CFS] or Q fever fatigue syndrome using the TSPO ligand [11C]-PK11195, 2021, Raijmakers, Knoop et al

    I get by with paracetamol only as had side effects from pregabalin, codeine doesn’t suit me either. And sedative hangover from amitryptiline. I am at the milder end of spectrum but often not well enough to leave the house so more moderate a good % of the time. I don’t get bad headache more...
  8. NelliePledge

    Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2021, Murray

    I feel the need to repeat my usual point about papers lacking in clarity because they are written in this type of “academic” language. Often they seem thin on content and i suspect the language is used to cover over that. Many of the papers we see here would qualify for Pseuds Corner in...
  9. NelliePledge

    Covid-19 vaccination experiences

    I had Pfizer booster at a pharmacy
  10. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Simply because he is able to engage with Hammond both as a peer and as someone with lived experience of ME.
  11. NelliePledge

    UK: Guardian: "NHS to give therapy for depression before medication under new guidelines"

    And this is the generic approach you get for any long term condition as well. Mine was a 30 minute session every 2 weeks for 6-8 sessions, here’s your worksheet do you understand it, please fill in these questionnaires, bye, sausage machine style.
  12. NelliePledge

    Sexual Desire, Depressive Symptoms and Medication Use Among Women With Fibromyalgia in Flanders, 2021, Van Overmeire et al

    Is there any actual evidence that anti depressants SSRIs Tricyclics work in Fibro tho. I think people should absolutely get pain relief. HowI question whether given the significant sedation effects possible interactions and difficulty getting off these medications they are appropriate as a...
  13. NelliePledge

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I would be concerned that NICE responding would be seen by some as boosting her credibility.
  14. NelliePledge

    UK: Priority Setting Partnership for ME/CFS

    Thanks for your list @lunarainbows ive done it but forgot to make a note of my selection.:confused: I did focus on the underlying causes and symptoms. The stuff about service provision and support and doctors attitudes is easy to find out through surveys. More of a consultation process...
  15. NelliePledge

    Essay in Hippocampus Magazine: "Salisbury Steak Day"

    Really good piece and good luck with the competition
  16. NelliePledge

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    Leadership hiding behind a team. Workshop can mean a lot of different things - from a genuine collaboration to a token consultation with predetermined outcomes - depending on the attitude of those who have control.
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