Search results

  1. Mij

    Article: 'For South Asian women, it’s not just medical gaslighting that pervades their ME diagnoses', Shehla Ali

    Shehla Ali from About ME looks at the racism and discrimination that pervades healthcare for South Asian women living with ME. What is Bibi/Begum Syndrome? Medical terminology used to gaslight South Asian women, predominantly those who are elderly ad may have a language barrier. LINK
  2. Mij

    Two Million Brits Suffer LC and a Third Have Had it for More Than Three Years – yet Pleas for Extra Funding Rejected

    Groups representing UK sufferers are “very disappointed” as the US recently allocated another $515 million in research funding for what it called an “urgent healthcare crisis” LINK
  3. Mij

    Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul

    The M.E specialist I saw in 1991 based his assessment on onset, history, r/o other causes and relapses. The diagnosis was not made based on symptoms.
  4. Mij

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    "But the nature of the biological evidence remains contentious. Jeffrey Winters, a pathologist and chair of the division of transfusion medicine at the Mayo Clinic, said the way Pretorius and Kell describe amyloid clots is confusing to scientists who view amyloids in a different context. “I...
  5. Mij

    UK: Long Covid teachers join forces to sue ministers

    About 85 teachers in the UK have expressed an interest in joining the action LINK
  6. Mij

    Experiences and methods for observing, testing and tracking cognitive fatigueability and PEM - discussion thread

    Blurry vision is my first indicator and when my equilibrium starts to shift. It's not what I would describe as PEM, but I know I need to lie down soon.
  7. Mij

    Preprint Predictors of Postviral Symptoms Following Epstein-Barr Virus-Associated Infectious Mononucleosis in Young People - the IMMUC Study, 2024, Bodenhausen

    I don't know if I got EBV when I became ill in 1991 during sudden viral onset. I did not have fatigue, PEM or cognitive issues for years. I had vertigo and other symptoms and felt 'flat' after exercise. I was still functional for months until I was vaccinated with Hep B and that's...
  8. Mij

    Meaningful digital biomarkers derived from wearable sensors to predict daily fatigue in MS patients and healthy controls, 2024, Max Moebus et al

    Highlights Digital biomarkers predict fatigue ratings continuously throughout the day Physical and ANS activity while awake and asleep relate to fatigue ratings Dysfunction of the ANS alters the effects of biomarkers on fatigue ratings Summary Fatigue is the most common symptom among multiple...
  9. Mij

    Is Long Covid a type of ME/CFS?

    As a social introvert I would describe this more as burnout from too much socializing.
  10. Mij

    Sleep may trigger rhythmic power washing in the brain

    Quite the opposite study shows
  11. Mij

    Brain clearance is reduced during sleep and anesthesia, 2024, Andawei Miao et al

    Our experiments show that brain clearance is reduced during sleep and anesthesia, the opposite conclusion of ref. 3. Those authors observed that fluorescent dyes injected into the cerebrospinal fluid (CSF) via the cisterna magna penetrated further into the cortex during sleep and anesthesia...
  12. Mij

    Brain clearance is reduced during sleep and anesthesia, 2024, Andawei Miao et al

    Abstract It has been suggested that the function of sleep is to actively clear metabolites and toxins from the brain. Enhanced clearance is also said to occur during anesthesia. Here, we measure clearance and movement of fluorescent molecules in the brains of male mice and show that movement...
  13. Mij

    Coping with hot weather

    @Wonko Why spherical ice cubes? Just for fun or are they special in some way.
  14. Mij

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    Does anyone know if Rob Wurst studied people who experienced DOMS? Might not be practical since it only occurs for a shorter period of time.
  15. Mij

    Coping with hot weather

    It's going up to the upper 30's for the next few days and it's only May.
  16. Mij

    The Complex Disorders Alliance (CODA) formerly The Metrodora Foundation

    NEW YORK – The Metrodora Institute and UK company PrecisionLife on Monday said they will begin recruiting participants for clinical trials to evaluate potential precision diagnostic tests and treatments for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID that the...
  17. Mij

    Long Dismissed, Chronic Lyme Disease Is Finally Getting Its Moment

    Sue Gray, 59, basks in the sunlight in her former kitchen in Connecticut, shortly before moving into her mother's house. Sue has lived with Lyme symptoms since 1994. The pain, depression, and anxiety she experiences prevent her from working and have led her to feel unsupported, misunderstood...
  18. Mij

    Evaluation of blood pressure variation in recovered COVID-19 patients at one-year follow-up: a retrospective cohort study 2024 Azami et al

    Abstract Background Coronavirus disease 2019 (COVID-19) has various sequelae, one of which might be hypertension. We aimed to evaluate COVID-19’s impact on blood pressure (BP) in non-hospitalized patients at one-year follow-up. Method A total of 7,950 consecutive COVID-19 patients regularly...
  19. Mij

    Modern environmental factors

    When I saw a virologist years ago and all my lymphocytes (CD4, CD8 et) were way below normal range, he told me that I was born with it. I don't know if there's any truth to that or he just wanted me out of his clinic because I was asking too many questions. I was a perfectly healthy person...
Back
Top Bottom