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  1. Mij

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The wolf has officially entered the henhouse.
  2. Mij

    Development of a Definition of Postacute Sequelae of SARS-CoV-2 Infection, 2023, Thaweethai et al.

    A good start would be to change the name from RECOVER study to 'we just don't know yet'.
  3. Mij

    Well-known, famous people with ME/CFS (public thread)

    Covid fatigue can come and go it seems. I also noticed this in my own personal experience with leg muscle exhaustion without exertion from getting Covid (I assume) last December and a vaccine the next morning w/o realizing I caught Covid. I also got my 5th vaccine booster the end of...
  4. Mij

    Preprint Distinct disease-modifying therapies are associated with different blood immune cell profiles in people with relapsing-remitting MS, 2023

    Abstract Relapsing-remitting multiple sclerosis (RRMS) is a chronic inflammatory neurodegenerative disease of the central nervous system. Several disease-modifying therapies (DMTs) are approved for RRMS, all of which target the immune system, although having different mechanisms of action. DMTs...
  5. Mij

    The mechanism of impaired delayed recall verbal memory function in PD with orthostatic hypotension: a multiple imaging study, 2023, Xiaofan Xue

    Introduction: Orthostatic hypotension (OH) frequently accompanies autonomic dysfunction and is an important risk factor for cognitive impairment in Parkinson's disease (PD). However, the association between different cognitive functions and OH in PD patients is not yet fully understood...
  6. Mij

    Long Covid Clinical Trials—a list

    Immunoadsorption vs. Sham Treatment in Post COVID Patients With Chronic Fatigue Syndrome https://classic.clinicaltrials.gov/ct2/show/NCT05954325?cond=ME/CFS&cntry=DE&sfpd_s=07/06/2023&sfpd_d=14&sel_rss=new14
  7. Mij

    Early-onset hereditary isolated non-neurogenic orthostatic hypotension in a Swedish family, 2023, Jan Fagius et al

    Abstract Purpose Orthostatic hypotension is a common condition with heterogeneous and, in many cases, unclear underlying pathophysiology. Frequent symptoms are syncope and falls with a strong impact on daily life. A two-generation family with eight individuals segregating early-onset severe...
  8. Mij

    All orthostatic hypotension is neurogenic, 2023, Italo Biaggioni

    Absolutes are almost never true in clinical medicine, and it is likely that anecdotal cases of orthostatic hypotension (OH) in patients without autonomic failure will be reported in response to this article. Nevertheless, the purpose of this commentary, and its provocative title is to make the...
  9. Mij

    Iron deficiency and dysregulation

    Merged Iron deficiency goes unnoticed in too many U.S. female adolescents Typically, 15 μg/L is the cutoff used to diagnose iron deficiency, says Laura Murray-Kolb, a nutrition scientist at Purdue University in West Lafayette, Ind., who was not involved in the study. The WHO set that cutoff...
  10. Mij

    Very severe ME/CFS and multiple sclerosis

    Do you experience periods of wellness and relapses? I had MS r/o by a neurologist before I was given an M.E diagnosis because of a relapse. Was your onset infectious? Sudden or gradual?
  11. Mij

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    Copied from News from Canada On July 7, 2023, Mr. Acuna was sentenced to a $12,000 fine and a two-year probation order prohibiting the possession of sodium chlorite and the advertisement, sale, and manufacturing for sale of any unauthorized health products, including drugs and natural health...
  12. Mij

    News from Canada

    On July 7, 2023, Mr. Acuna was sentenced to a $12,000 fine and a two-year probation order prohibiting the possession of sodium chlorite and the advertisement, sale, and manufacturing for sale of any unauthorized health products, including drugs and natural health products. MMS has been promoted...
  13. Mij

    Dr Byron Hyde - Canada

    Post copied from IIMEC 2023: Maureen Hanson Dr.Byron Hyde Non-Infectious M.E. Type Disease: I have not discussed noninfectious M.E.-type disease. Similar M.E phenomena can occur due to CNS injuries from toxic chemical injury. I have seen this in police officers who have fallen into toxic...
  14. Mij

    IIMEC 2023: Maureen Hanson

    I've known a few gradual onset pwM.E that took many antibiotics during their young life, they didn't have a known infectious onset but suffer with allergies, MCS and mold for decades. Their immune profile and phenotyping lymphocyte counts were worse than mine.
  15. Mij

    Long Covid in the media and social media 2023

    I've seen many M.D's on Twitter recognizing the seriousness of LC and approving this so it is a good thing putting that out there.
  16. Mij

    Long Covid in the media and social media 2023

    Closing of Toronto long-COVID rehab program a failure to support patients “Until there’s some politicians who actually have long COVID are they going to realize how debilitating it actually is and how we should have done more for people,” she said. “The government told everyone to stay home, we...
  17. Mij

    Coenzyme Q10 Benefits Symptoms in Gulf War Veterans: Results of a Randomized Double-Blind Study, 2014, Golomb et al

    Were the subjects tested to see if they had low levels of COQ10? I'm not sure an RBC test gives an accurate reading, but I read (somewhere) that testing at the cellular level is more accurate. My test results for CoQ10 (RBC) was considered 'low' but was in the midrange level on my chart...
  18. Mij

    2023 IIMEC15 - Alain Moreau

    Do we know if immediate PEM is the same or similar as delayed PEM?
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